"My child, never forget the things I have taught you. Store my commands in your heart. If you do this, you will live many years, and your life will be satisfying. Never let loyalty and kindness leave you! Tie them around your neck as a reminder. Write them deep within your heart. Then you will find favor with both God and people, and you will earn a good reputation.
Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take." [Proverbs 3:1-6]
I know many of you have been asking or maybe just wondering; "You only have 4 days to close on the house, what are you going to do?" "Don't you think it is time to make a decision?" "Where are you going to live?" "What are your decisions?" ... well, here come the decisions.
First, let me say thank you! Thank you for your prayers of wisdom, strength, clarity and direction! The Peace and Grace of our Heavenly Father has been overwhelming in the last several weeks...and I must share with, we will continue to wait upon His - Perfect - Timing and Will, we will continue to follow Christ - denying our selfish desires, picking up our cross, and following Him wherever He calls us - even if that means waiting until the last minute. The Word teaches us to be "anxious in nothing", and so many times the world tells us to "pull the trigger" or "throw the pass" even when we know it is not right! And that pressure has been there - intensely - over the last three days specifically, but last night was a night of breakthrough and surrender. Followed by peace and clarity...two necessary elements to make a wise decision!
Jackson Update: This morning we met with our team of doctors and had another echo-cardiogram to check Jackson's heart. The doctors found that the left side of his heart has stopped growing - meaning the measurements taken this morning are the same as they were two weeks ago. This is both good and bad news.
Good news: The diagnosis of Dr. Speer, Dr. Sherman and Dr. Emery two Thursday's ago is spot on - and are extremely encouraged by the early detection! This morning's findings confirm Jackson does have Aortic Stenosis currently, which is the root of his Hypoplastic Left Heart Syndrome. So the care, strategy and preparation over the last two weeks is a great foundation to work from to save Jackson's life.
Bad news: Flow equals Grow - is the best way to explain it! Since there is no flow or squeeze in the left ventricle, the left side of the heart/the muscle is not going to grow anymore - unless there is an intervention. If we would not proceed with the Fetal Aortic Balloon Valveioplasty procedure, the left side of the heart would stay the same as it is today - with no function at birth - while the right side of the heart would continue to develop over the next twenty weeks.
The Great News (and it is always Great News)...as that the Lord has led and given us great peace in the decision to move forward with the experimental procedure - with an overwhelming peace, clarity and confidence to have the procedure completed right here in Pittsburgh! As Kelly quoted: "We have the superbowl champions and NHL champions this year - why not one more for the city!"
So a team of doctors and surgeons from Pittsburgh's Childrens Hospital, led by Dr. Emery and Dr. Sherman, are currently pulling all the pieces/plans together for the procedure to happen in Magee Women's Hospital, under the oversight of Dr. Speer, within the next week or so. Because the doctors found this morning that the left side of Jackson's heart has stopped "growing" - they have moved up the procedure date by at least a week. We could have the procedure as early as this week, Friday the 24th or as late as next Friday - needless to say...the next 10 days are going to be intense! As soon as we know the date from the doctors, we will be sure to let you know!
Move Update: This morning's news affirmed and clarified our decision regarding the move, after a weekend of focused prayer and pleas for the Lord to give us direction, rescue, clarity and peace! And man, did He ever deliver! A crew is coming to pack tomorrow morning at 9:00am, another crew will come to move us on Wednesday, and Thursday will be a day of final moving/cleaning, with the closing on Friday. A moving company has offered to store our stuff for an indefinite period of time - free of charge, and so we will be heading to my parent's farm home outside of Kittanning, PA - a small/country town called Dayton, PA - as a place of retreat and sanctuary to get us through the next couple of weeks and Jackson's procedure. Our plan is to stay there temporarily until the Lord directs us to the home He is preparing for us - in His timing!
We have yielded and are following His lead to this place of refuge and an opportunity to catch our breath, and I ask that you please continue to cover us in prayer in the move, and that we continue to yield to the Holy Spirit's leading in our life as to location, direction, and the home! We have an overwhelming sense of peace that this is where God is calling us to "land" for a couple of weeks, and we will remain in a state of prayer - as it is the foundation to Wisdom and Strength!
We serve an Awesome God - and we lean not on our own understanding, but it accept it by faith, that as we seek His Will for our lives, He will show us what path to take...even if it is last minute!
All Eyes on Jesus!
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