"Can anything ever separate us from Christ’s love? Does it mean he no longer loves us if we have trouble or calamity, or are persecuted, or hungry, or destitute, or in danger, or threatened with death? (As the Scriptures say, “For your sake we are killed every day; we are being slaughtered like sheep.”) No, despite all these things, overwhelming victory is ours through Christ, who loved us." [Romans 8:35-37]
Talk about Encouraging News...
Finally - the opportunity for Kelly and I to "reset" and get back on the same page for an hour and a half of un-interrupted time! It was awesome...and very much needed! Granted, it was the drive from the Farm to Magee Women's Hospital yesterday morning - and we do desperately miss our 15 minute trip from our old house - but, it was a great opportunity for Kel and I to reconnect and talk/pray through many of the "waves" that we are facing right now!
Our day in Pittsburgh started with a wonderful lunch conversation with an awesome sister/mentor in Christ at Panera - and finally, Kelly found a meal that tasted great...Panera's chicken noodle soup and a sourdough roll! And with a full cooler and two large bags of food/meals from our small group - who are all absolutely amazing! Miss you guys so much! And can't wait to see you all! - we left Panera prayed up and ready for an afternoon at the hospital...
The first stop was to get Kelly's 15 staples out! The nurse and Dr. Harris were great and very encouraged by the way Kelly's incision was healing! There are no signs of infection, and they shared with us that the reason for the intense pain across Kel's incision is because of the "stretch, pressure and pull" from the ongoing pregnancy and Jackson's movement in the womb! Praise the Lord - again, great pain - but intense pain to say the least! I can only imagine...literally!
With the staples out and the butterfly strips on - it was time for the ultrasound! As we waited in the waiting room - a mother and three children came in and sat down beside us! Her oldest son, and middle daughter reminded us so much of Carter and Jordyn! The girl even had the same curly hair and "personality" of Jordyn! It was nuts...and absolutely hilarious! Can't wait...no, really I can!
As the tech prepped Kel for the ultrasound, Dr. Speer came in and asked us if it would be alright if a few of his colleagues could observe our appointments today. Absolutely! We understand that they are seeing/studying things that have never been witnessed before-and are excited, just as we are to see how Jackson is developing - and man was it was awesome to see Jackson! He was moving all over the place - but, laid in perfect position for the tech to get some great pictures and measurements! And, as soon as Dr. Speer sat down to take over - wouldn't you know it - Jackson rolled over and would only show him his spine! It was hilarious! It was the same exact position Jackson would roll too on Friday every time Dr. Speer tried to position him for the surgery! It was a great moment, and these two definitely have a history already - as Dr. Speer's holding of Jackson in position last Friday gave a whole new meaning to "God parent", intercessor and laying on of hands!
With the great results from the ultrasound, it was time to look at how Jackson's heart was healing/developing through an Echo with Dr. Sherman. Immediately you could see the difference in the flow! You could also see the excitement and intense interest of Dr. Sherman and Dr. Speer - as they were seeing things that they had never had the opportunity to witness/study before! It was so cool! They found that Jackson still has Mitral Regurgitation between the two left chambers of his heart - but with more velocity since the surgery! "In theory" this means that the left side of his heart is able to create more force/pressure post-procedure, thus creating more velocity, and possibly meaning the left side of his heart is growing/developing! This is all "in theory" because it is all so new - and they are just not sure what all of it means as to Jackson's development/prognosis! It is truly a "wait and see" journey at this point! Jackson's aortic valve continues to have a leak post-procedure, meaning they have definitely improved the flow, as there was hardly any flow before the surgery, and now there is a leak! They are unsure as to the severity of the leak...but, their hope is that over the next four months as Jackson is in the best environment for healing possible - in utero - that the valve will heal or possibly just need a valve replacement upon delivery! Again - very encouraging!
With all that being said...it was a day full of encouraging news! But the most encouraging news is that there seems to be a "flutter" or a "slide" on the left side, posterior/lateral wall of his left ventricle - which was not there prior to the surgery! Meaning, there is more movement in the left side of his heart post procedure! But, again - it is all to soon and new to know what this means in regards to Jackson's development! I truly believe that the next four months, leading up to delivery, may very well be the longest four month stretched we have ever faced! Jackson is not out of the woods at this point - and still very much needs our prayers, and supernatural, divine healing over the next four months before delivery - but we and our team of doctors are extremely encouraged and are leaning into the uncertainty! I can't wait to see how the Lord continues to move in and through Jackson, our team of doctors and all that we have the opportunity to share His story with!
Remember - God is the main character in Jackson's story, not Jackson! And we are so excited, encouraged and thankful for the Lord's Grace and Healing Hands upon Jackson's life! He is so Faithful...and what can ever separate us from His Love?
It is a tough question...and one that many people have been running from for many years! NOTHING can separate us from the Overwhelming Love and Victory we have through Christ! When we are face to face with the storms, trials, tribulations, dangers, loss of a job, loss of a loved one or any other valley of darkness - we must stand firm on this Promise! And when I read this scripture late last night - after an awesome conversation with a very close friend and brother in Christ, who God is just moving powerfully through - like never before, these words gripped my heart! "Live Victoriously" has been a rally cry for years, but it is time Church! It is time for us to Live in the Overwhelming Love and Victory that we have through Christ Jesus - our Risen Lord and Savior! And the toughest question just might be..."why not?"
What have you not yet surrendered? What still has a stronghold in/over your life? What/Who are you afraid of? Who is that barrier, or button-pusher, who just continues to sow seeds of doubt into your heart! And why are your eyes on them or that! Get your eyes fixed on Christ and Live Victoriously! Christ has conquered sin and death through the Cross - His blood has been shed, and battle was already been won! And He is coming back again! "I am convinced that nothing can ever separate us from God’s love. Neither death nor life, neither angels nor demons, neither our fears for today nor our worries about tomorrow—not even the powers of hell can separate us from God’s love. No power in the sky above or in the earth below—indeed, nothing in all creation will ever be able to separate us from the love of God that is revealed in Christ Jesus our Lord." [Romans 8:38-39]
Please know that “you are the light of the world... let your good deeds shine out for all to see, so that everyone will praise your heavenly Father." [Matthew 5: 14,16]
All Eyes on Jesus...
Thursday, July 30, 2009
Wednesday, July 29, 2009
Peace and Strength...
"Honor the Lord, you heavenly beings; honor the Lord for his glory and strength. Honor the Lord for the glory of his name. Worship the Lord in the splendor of his holiness." [Psalm 29:1-2]
So many times throughout this journey I have relied on David's words through out the Psalms to lift my eyes...and talk about an opportunity to see the authenticity and transparency of a life in relationship with God. His heart cries, his joy, his plea, his worship, his struggle, his encouragement, his desperation, his hope, his surrender, his love for our God - His Strength and Peace!
And strength and peace is exactly what yesterday held! The reinforcements - Katie - arrived yesterday right before lunch, and what an awesome blessing she has been! The kids were so excited for her to come and hang with us for a couple of days - especially Carter - as Katie has been there time and time again to watch the kids for Kel and I when we had small group, a date night, a dinner out, doctor's appointments, or just needed to get a way for an evening/afternoon! And when the procedure was moved up to last Friday, we never had the chance to get my mom and dad's place "set up" for us to stay here for a couple of weeks in the midst of our move! So, yesterday was day of organization and cleaning. Katie, Carter - who is an awesome helper at age 5 and one heck of a worker - and I set up the basement as the kids play room/tv room - allowing Kel the opportunity to relax/rest in the family room. We also worked at getting the bedrooms put together, especially the kids room! And man, what a difference 6 hours of sweat equity can make in a home! When we sat down to dinner last night - Katie made crock pot Lasagna that was awesome, and the first meal that Kelly felt good enough to enjoy - we were exhausted, but such a peace had come over Kelly and I, just with having the house set up! Of course we long for a place of our own, and will begin looking for houses again soon - but, finally, we are just able to take a deep breath here at the farm, and feel like we are somewhat comfortable and put together!
Kelly was feeling much better last evening, after a day spent on the couch watching "chick flicks" with good naps in between - or during! She still has a lot of incision pain, and we are worried it may be a little infected. Her nausea has subsided and she seems to be getting around a little easier, but it is still really painful for her to get up and down from a seated or laying down position. Unlike a C-section where the baby is in your arms after the surgery, the ongoing pregnancy and Jackson continuing to grow, do somersaults and kicks [Hallelujiah] there is so much added pressure to her incision and abdomen...and at times the pain just brings her to tears! They are tears of joy don't get me wrong - and Kelly will be the first to tell you that - but, the joy comes through the pain!
Today is going to be a full day, and please be in prayer for Kel's comfort and physical strength with all the driving, sitting, walking and just movement the day will hold! This is our first trip to the hospital since being discharged on Sunday and we are both anxious to see how Jackson is doing! We are so excited to see our team of doctor's and just have the opportunity to talk with and continue to learn with them! The schedule looks like this...
11:15 - Leave Dayton and drive to Magee Women's Hospital
12:30 - Lunch with Kathy (who is bringing us meals organized by/through our small group from NorthWay)
1:30 - Appointment to have Kelly's staples removed and to check her incision
2:30 - Ultrasound
3:00 - Echo and meeting with Dr. Speer and Dr. Sherman
5:30 - Hopefully, back home here at the farm - with great news to share!
I will try to update the blog later this evening...but please be in prayer through out the day! Many of you have been asking in what "specific" ways you can be praying for us, and again I would plea with you to be praying for Kel's pain and incision, and just the strength/peace and comfort to get through our day! Pray for healing upon Jackson's aortic valve following the procedure - as we hope to know more about his valve following our echo/meeting this afternoon! And stand firm on the Truth found in Romans 8 that "the Holy Spirit helps us in our weakness. For example, we don’t know what God wants us to pray for. But the Holy Spirit prays for us with groanings that cannot be expressed in words. And the Father who knows all hearts knows what the Spirit is saying, for the Spirit pleads for us believers in harmony with God’s own will. And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them." [Romans 8:26-28]
And continue to worship and praise His Name - the Name of Jesus - that He Loves, Lives and is always there for us! He was, is and is always going to be our Rock, Refuge and Rescue!
All Eyes on Jesus!
Tuesday, July 28, 2009
Pressing on...
"...But one thing I do: Forgetting what is behind and straining toward what is ahead, I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus." [Phillipians3: 13-14]
One of my favorite scriptures [and one of my "life" verses] that has always allowed me to see the humility and strength of the Apostle Paul. If he didn't have it altogether - other than Christ, who on this planet ever has! These words - written as Paul was facing imprisonment and an upcoming trial - truly expresses his joy and faith in Christ...while encouraging us to walk humbly and in unity! These words are the definition of "All Eyes on Jesus!" ... Pressing on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us!
Pressing on...is a phrase that has new meaning over the last few weeks! And yesterday - was one of those days that brought this phrase to life! I so wanted an escape yesterday - a beach with white sands, waves crashing, a cool breeze and no one around would have done! The kids were off the wall - which, is to be expected after a week away from Mommy and Daddy - and in a brand new "set up" here at the farm! Getting back into the routine is never easy...and after a rough night's sleep, Kelly woke up yesterday around 8:00am and was in severe pain! On top of that - her nausea was so intense that she threw up - which brought more pain and stress to her abdomen! Her nausea was overwhelming, so she didn't eat, and was taking pain meds on an empty stomach - which led to more nausea - not a good cycle! And wanting to focus on Kel and get her comfortable, while taking care of the kiddos really made that beach scene look good!
Then came a huge blessing - Dr. Speer called to check in, and was very concerned about Kelly's nausea and pain. He called in a prescription of Zofran to calm her stomach, hopefully allowing her to eat a little more, and allowing the pain meds to be taken with less nausea - that was countering there effect. But, calling in a prescription, became quite the adventure - and man do you miss the city, whenever you need a perscription to be filled quickly! So, I dropped Carter off at my Aunt's to play with two of his cousins that are in from California - and Jordyn and I were off to Kittanning to grab Kelly's prescription! Well - two hours later we got home! The prescription was at another location, Jordyn was a handful to say the least, and a half hour drive in one direction, with a Wal-Mart run thrown in for groceries that Kelly "thought" would taste good - was just nuts! Man, I could have used one of those 5 minute runs to Target! And of course - while we were gone, which is the first time Kelly had been alone - her pain had gotten worse!
But once I got back...got Kel's meds in her, Jordyn to sleep, and Carter enjoying "quiet time"...Daddy was more than ready for an afternoon nap! And then Paul's words slapped me in the face...press on, get up, get going, be strong, be courageous, one step at a time, get your eyes on Jesus - for the Lord your God is with you, before you and behind you! He is your strength, He is your peace, He is your Joy, Rescue and Escape...keep going!
So many times in life I/we want to scream - why? But it is not the right question! And further more - it is the absolute wrong question! The right question is - who? Who are we focused on? Who is our source of strength? Who is our source of hope, encouragement, life? Who is our motivation? Who is our testimony? Who is our worship?
Is it the/a celebrity? The singer, star, or athlete? Is it our children, spouse, significant other? Our co-workers, boss, team or position? Is it our family, friends, or church community? And please - don't get me wrong - these can be absolutely incredible people, but can also take the "spotlight", glory and honor that is due to Christ Jesus alone in our worship and praise! And yesterday - He bumped me - and reminded me that my undivided attention must be on Him and Him alone! If it is...everything else will remain in perfect balance! He must be the "hub" of our lives in order for every "spoke" - the people/things that He needs us to stand in the gap for - to be perfectly positioned and allow us to "roll" according to His Purpose and Will...and again, please know that this knucklehead has not "already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me." [Philippians 3:12]
And prayer is our best help when trials come our way, because it keeps us in communion with God! And is exactly what Kelly and I continue to lean into to transform our perspective! After an awesome conversation with my Managing Director with the Billy Graham Association...who has been absolutely unbelievable in and through this entire storm! The outpouring of support and love from the men and women that I serve along side of has been unfathomable! Talk about a ministry/community of prayer, encouragement and hope! And having the opportunity to take this week off - and next if I need it - to love on my bride and kids, is one of the greatest blessings in the midst of this journey!
Then Grandma Barrett showed up with dinner [Hallelujah] - and even though Kel still did not have an appetite - corn, applesauce and strawberry shortcake was a little bit of heaven for Carter, Jordyn and Daddy! And after watching a doe and two fawns in the back yard for a little while - all was quiet, both kids asleep and an awesome moment for daddy and mommy to just sit still and pray/talk together!
Yeah - it was a long day, but once again the power of prayer turned the day upside down and truly allowed us to see God's grip of Grace in our lives! Kelly and I continue to me amazed at how the Lord continues to reveal himself to us time and time again, and continues to teach us to be strong and courageous, for the Lord God is with you wherever you go! Standing firm on that Promise found in Joshua 1:9...
Today - has been an awesome morning! Kel and I were up early...allowing for some great quiet time, devotion and conversation! With breakfast already in us, the sun shining, and the kids anxiously awaiting the arrival of Katie - Kelly's cousin who will be staying with us for a few days to help [Praise the Lord] today is going to be an awesome day!
All Eyes on Jesus!
One of my favorite scriptures [and one of my "life" verses] that has always allowed me to see the humility and strength of the Apostle Paul. If he didn't have it altogether - other than Christ, who on this planet ever has! These words - written as Paul was facing imprisonment and an upcoming trial - truly expresses his joy and faith in Christ...while encouraging us to walk humbly and in unity! These words are the definition of "All Eyes on Jesus!" ... Pressing on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us!
Pressing on...is a phrase that has new meaning over the last few weeks! And yesterday - was one of those days that brought this phrase to life! I so wanted an escape yesterday - a beach with white sands, waves crashing, a cool breeze and no one around would have done! The kids were off the wall - which, is to be expected after a week away from Mommy and Daddy - and in a brand new "set up" here at the farm! Getting back into the routine is never easy...and after a rough night's sleep, Kelly woke up yesterday around 8:00am and was in severe pain! On top of that - her nausea was so intense that she threw up - which brought more pain and stress to her abdomen! Her nausea was overwhelming, so she didn't eat, and was taking pain meds on an empty stomach - which led to more nausea - not a good cycle! And wanting to focus on Kel and get her comfortable, while taking care of the kiddos really made that beach scene look good!
Then came a huge blessing - Dr. Speer called to check in, and was very concerned about Kelly's nausea and pain. He called in a prescription of Zofran to calm her stomach, hopefully allowing her to eat a little more, and allowing the pain meds to be taken with less nausea - that was countering there effect. But, calling in a prescription, became quite the adventure - and man do you miss the city, whenever you need a perscription to be filled quickly! So, I dropped Carter off at my Aunt's to play with two of his cousins that are in from California - and Jordyn and I were off to Kittanning to grab Kelly's prescription! Well - two hours later we got home! The prescription was at another location, Jordyn was a handful to say the least, and a half hour drive in one direction, with a Wal-Mart run thrown in for groceries that Kelly "thought" would taste good - was just nuts! Man, I could have used one of those 5 minute runs to Target! And of course - while we were gone, which is the first time Kelly had been alone - her pain had gotten worse!
But once I got back...got Kel's meds in her, Jordyn to sleep, and Carter enjoying "quiet time"...Daddy was more than ready for an afternoon nap! And then Paul's words slapped me in the face...press on, get up, get going, be strong, be courageous, one step at a time, get your eyes on Jesus - for the Lord your God is with you, before you and behind you! He is your strength, He is your peace, He is your Joy, Rescue and Escape...keep going!
So many times in life I/we want to scream - why? But it is not the right question! And further more - it is the absolute wrong question! The right question is - who? Who are we focused on? Who is our source of strength? Who is our source of hope, encouragement, life? Who is our motivation? Who is our testimony? Who is our worship?
Is it the/a celebrity? The singer, star, or athlete? Is it our children, spouse, significant other? Our co-workers, boss, team or position? Is it our family, friends, or church community? And please - don't get me wrong - these can be absolutely incredible people, but can also take the "spotlight", glory and honor that is due to Christ Jesus alone in our worship and praise! And yesterday - He bumped me - and reminded me that my undivided attention must be on Him and Him alone! If it is...everything else will remain in perfect balance! He must be the "hub" of our lives in order for every "spoke" - the people/things that He needs us to stand in the gap for - to be perfectly positioned and allow us to "roll" according to His Purpose and Will...and again, please know that this knucklehead has not "already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me." [Philippians 3:12]
And prayer is our best help when trials come our way, because it keeps us in communion with God! And is exactly what Kelly and I continue to lean into to transform our perspective! After an awesome conversation with my Managing Director with the Billy Graham Association...who has been absolutely unbelievable in and through this entire storm! The outpouring of support and love from the men and women that I serve along side of has been unfathomable! Talk about a ministry/community of prayer, encouragement and hope! And having the opportunity to take this week off - and next if I need it - to love on my bride and kids, is one of the greatest blessings in the midst of this journey!
Then Grandma Barrett showed up with dinner [Hallelujah] - and even though Kel still did not have an appetite - corn, applesauce and strawberry shortcake was a little bit of heaven for Carter, Jordyn and Daddy! And after watching a doe and two fawns in the back yard for a little while - all was quiet, both kids asleep and an awesome moment for daddy and mommy to just sit still and pray/talk together!
Yeah - it was a long day, but once again the power of prayer turned the day upside down and truly allowed us to see God's grip of Grace in our lives! Kelly and I continue to me amazed at how the Lord continues to reveal himself to us time and time again, and continues to teach us to be strong and courageous, for the Lord God is with you wherever you go! Standing firm on that Promise found in Joshua 1:9...
Today - has been an awesome morning! Kel and I were up early...allowing for some great quiet time, devotion and conversation! With breakfast already in us, the sun shining, and the kids anxiously awaiting the arrival of Katie - Kelly's cousin who will be staying with us for a few days to help [Praise the Lord] today is going to be an awesome day!
All Eyes on Jesus!
Sunday, July 26, 2009
"Let's get those papers rollin"...
was Kelly's response when we found out that we were being discharged this afternoon! It was hilarious - Pastor Scott Stevens and I lost it - and it will be a moment that I will never forget! Kel comes up with some good one liners - but "let's get those papers rollin" is one of her best...
So, after a great mid-morning to early afternoon of rest - the doctors decided to discharge Kelly and Jackson! Things are going/progressing well...her pain is under control - although she is still very sore and unable to really do a whole lot at this point. The next six weeks are going to be tough for her - especially as she is unable to care for Jordyn and Carter in the incredible way she normally does day in and day out! She is an awesome mommy - and tonight when her mom and dad [who by the way need our prayers as Grandma Backhoe - that's Kelly's mom - fell and broke both of her arms over the weekend!] brought the kids over to the farm, it was a very emotional reunion as Kelly was unable to pick up and cuddle with Jordyn and Carter like she always does! Gonna be rough and many tears may be shed...but we will get through this, and will be bringing in some reinforcements in the way of support! And it means that "daddy" needs and will step up his care of the most important people in my life - Mommy, Carter, Jordyn and Jackson!
And after an evening of playing outside together, making dinner, a quick four wheeler ride, two baths and bedtime routines this guy is exhausted! It has been a long and emotionally intense weekend, and since Jordyn, Carter and Kel are all sleeping...time for this guy to call it a day! I hope you had an awesome weekend and thank you again for all your prayers and encouragement to get us through this weekend! I can't wait to see what God has in store for us this week!
All Eyes on Jesus...
So, after a great mid-morning to early afternoon of rest - the doctors decided to discharge Kelly and Jackson! Things are going/progressing well...her pain is under control - although she is still very sore and unable to really do a whole lot at this point. The next six weeks are going to be tough for her - especially as she is unable to care for Jordyn and Carter in the incredible way she normally does day in and day out! She is an awesome mommy - and tonight when her mom and dad [who by the way need our prayers as Grandma Backhoe - that's Kelly's mom - fell and broke both of her arms over the weekend!] brought the kids over to the farm, it was a very emotional reunion as Kelly was unable to pick up and cuddle with Jordyn and Carter like she always does! Gonna be rough and many tears may be shed...but we will get through this, and will be bringing in some reinforcements in the way of support! And it means that "daddy" needs and will step up his care of the most important people in my life - Mommy, Carter, Jordyn and Jackson!
And after an evening of playing outside together, making dinner, a quick four wheeler ride, two baths and bedtime routines this guy is exhausted! It has been a long and emotionally intense weekend, and since Jordyn, Carter and Kel are all sleeping...time for this guy to call it a day! I hope you had an awesome weekend and thank you again for all your prayers and encouragement to get us through this weekend! I can't wait to see what God has in store for us this week!
All Eyes on Jesus...
One rough night...
"Faith is the confidence that what we hope for will actually happen; it gives us assurance about things we cannot see." [Hebrews 11:1]
Last night was rough, ya'all! Kel fell sleep around 9:30pm - two hours after taking her pain medicine - and slept soundly until we were woke up around 1:00am, when the remote control to the TV fell to the floor and accidentally hit the "nurse call" button...and we hear, "may I help you!" After apologizing for accidental call and feeling absolutely foolish, what followed was one of the toughest night's we have ever put in!
Kel was now wide awake, two hours behind in her pain meds and very sore! The nurses ended up coming in to give her medicine and try to get her comfortable again. Her stomach was "tightening" as Kelly described and was describing the pain as an 8 on a scale of 1 to 10...10 being the worst pain ever. Obviously, this had everyone concerned that she was having contractions or signs of pre-term delivery. After getting medicine in her and monitoring her uterus and Jackson for about a half hour - the on call doctor comes in for an internal exam of her cervix. I can only imagine how much pain she is in during all of this! I was in pain just watching....then Jackson decides to do some back flips and dance in Kelly's belly! You should have heard him on the monitor - I swear he knew exactly where the probe/microphone was and he was kicking it from the inside out!
Finally - after several hours of examination, the doctors determined that Kelly's uterus is still "contracting" back into place after being manipulated so much during the procedure, and that her pain was heightened by Jackson's movements! They described the fact that she is going to experience pain similar to her two prior c-sections with Carter and Jordyn, but will be more intense due to Jackson pushing, kicking, and pressure on a sore uterus and incision! But, it is like Kelly said - this is the best case scenario! Jackson is alive and doing well...and a growing baby boy with flow through his left ventricle and aorta! She is so awesome...talk about faith and perspective!
Since Kelly is the first patient with a successful Fetal Aortic Balloon Valveoplasty here in Pittsburgh - there are many "first time" moments for all involved and with that comes moments of uncertainty! So please keep our team of doctor's and nurses covered in prayer for their strength, wisdom, discernment and peace! There were many anxious and intense moments through out the early morning hours through the uncertainty...but we finally did get some sleep from about 4 to 9am! Hallelujah! And as I write this update morning...Kelly is back to sleep and is absolutely beautiful! She looks so peaceful and is getting some great rest! Thank you so much for I am seeing the impact of your prayers!
There is a possibility that we may be heading home to the farm today - but are waiting to meet with Dr. Speer before the discharge plan is determined! So please continue to cover Kelly's rest and comfort in prayer - and I will let you know the discharge forecast [as it is raining here in the 'burgh this morning] as soon as we know! Have an awesome Sunday!
All Eyes on Jesus...
Last night was rough, ya'all! Kel fell sleep around 9:30pm - two hours after taking her pain medicine - and slept soundly until we were woke up around 1:00am, when the remote control to the TV fell to the floor and accidentally hit the "nurse call" button...and we hear, "may I help you!" After apologizing for accidental call and feeling absolutely foolish, what followed was one of the toughest night's we have ever put in!
Kel was now wide awake, two hours behind in her pain meds and very sore! The nurses ended up coming in to give her medicine and try to get her comfortable again. Her stomach was "tightening" as Kelly described and was describing the pain as an 8 on a scale of 1 to 10...10 being the worst pain ever. Obviously, this had everyone concerned that she was having contractions or signs of pre-term delivery. After getting medicine in her and monitoring her uterus and Jackson for about a half hour - the on call doctor comes in for an internal exam of her cervix. I can only imagine how much pain she is in during all of this! I was in pain just watching....then Jackson decides to do some back flips and dance in Kelly's belly! You should have heard him on the monitor - I swear he knew exactly where the probe/microphone was and he was kicking it from the inside out!
Finally - after several hours of examination, the doctors determined that Kelly's uterus is still "contracting" back into place after being manipulated so much during the procedure, and that her pain was heightened by Jackson's movements! They described the fact that she is going to experience pain similar to her two prior c-sections with Carter and Jordyn, but will be more intense due to Jackson pushing, kicking, and pressure on a sore uterus and incision! But, it is like Kelly said - this is the best case scenario! Jackson is alive and doing well...and a growing baby boy with flow through his left ventricle and aorta! She is so awesome...talk about faith and perspective!
Since Kelly is the first patient with a successful Fetal Aortic Balloon Valveoplasty here in Pittsburgh - there are many "first time" moments for all involved and with that comes moments of uncertainty! So please keep our team of doctor's and nurses covered in prayer for their strength, wisdom, discernment and peace! There were many anxious and intense moments through out the early morning hours through the uncertainty...but we finally did get some sleep from about 4 to 9am! Hallelujah! And as I write this update morning...Kelly is back to sleep and is absolutely beautiful! She looks so peaceful and is getting some great rest! Thank you so much for I am seeing the impact of your prayers!
There is a possibility that we may be heading home to the farm today - but are waiting to meet with Dr. Speer before the discharge plan is determined! So please continue to cover Kelly's rest and comfort in prayer - and I will let you know the discharge forecast [as it is raining here in the 'burgh this morning] as soon as we know! Have an awesome Sunday!
All Eyes on Jesus...
Saturday, July 25, 2009
Faith crushes Fear!
"For God has not given us a spirit of fear and timidity, but of power, love, and self-discipline." [2 Timothy 1:7]
This afternoon Paul's words in 2 Timothy and those of Christ found in John 16:33..."so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world." .. have been great encouragement to us!
Today has had its ups and downs, with a wide range of emotions from anxiety, worry, excitement, gratitude, uncertainty, strength, exhaustion, joy, fear and peace! It has been an intense day of reflecting/processing the miracle of Jackson's life-changing procedure yesterday! It has been overwhelming at times - not going to lie! Overwhelming in the sense of thanksgiving! Overwhelming in the sense of pure joy! Overwhelming in the sense of how great God's love, healing, grace, strength and peace are present in our lives! And overwhelming in the sense of how intense this storm has been...and the only way that we are still standing is because of the peace and strength we have in Christ - as He has demonstrated His Love, Guidance and Provision through all of you!
The trials in the last two weeks have been crazy - to say the least - but, God has given us an Advocate, Counselor, Comforter and Encourager in the Holy Spirit! And here is the Truth that has truly brought me to a point of surrender through out the day: Fear is the enemy of Faith! If I told you that through this whole journey there has not been moments of fear - I would be a hypocrite! Fear has been an emotional reaction that we have had to truly surrender time and time again, and today...we had to surrender this emtion again! Our faith has been tested like never before in this journey - and it is continuing to be tested! This journey is no where near over - and even as we sit on the other side of one of the greatest miracle I have ever witnessed with an attitude of praise...the enemy is not going to stop attacking! We must continue to remain surrendered at the foot of the Cross, and must stay prepared and focused in the Word as the enemy is going to bring every scheme possible to shift our eyes off of Jesus in this storm...and when/if you are experiencing moments of fear, timidity, worry or doubt...as we have in this storm - know that your eyes are not on the One who promises Life, Strength, Peace and Rescue! Christ taught us to deny/surrender our selfish desires [including fear] daily, pick up our cross and follow Him if we truly want to be His disciples!
Tonight...please continue to pray! Pray for Rest and Strength to cover Kelly and Jackson! Kelly has been getting out of bed and moving around this afternoon/evening, eating great (heck, she had pizza for dinner!) and is feeling much better! The doctors/nurses have gotten on top of her pain - eventhough she is still a little "itchy" and sore - and is doing so much better tonight compared to late last night and early this morning! As for Jackson...He is doing great! His heartbeat continues to be strong anywhere from 145-160 beats per minute - and continues to bounce around inside of Kel - a great praise, but also a point of pain for a sore mommy!
Pray for continued Peace and Patience as we continue to wait upon the Lord! The next four months - may very well be the longest four months of our lives! The "waiting" has just begun - and is another intense test for a man who loves to move at 300 mph! God teaches us "peace, be still", and that He leads us beside "still waters"...and many times there seems to be more fun and excitement in the "wake" rather than in the "still" waters, but this whole journey has been such a learning experience, and I/we will continue to lean into the prompting and teaching of the Holy Spirit! There is an overwhelming sense of peace that goes beyond all understanding, and the Lord is teaching this knucklehead a new definition of "stillness"! I am looking forward to "slowing down" and focusing on enjoying the blessing of today!
Our natural reaction to many of life's hurdles, trials, adversities and storms may be fear [whatever that fear may be] - but, peace...well, peace is the supernatural, divine response God gives us by His Grace through His Son! Choose to respond rather than react, because fear is the enemy of Faith. Stand firm on the Promise that Faith crushes Fear!
All Eyes on Jesus...
This afternoon Paul's words in 2 Timothy and those of Christ found in John 16:33..."so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world." .. have been great encouragement to us!
Today has had its ups and downs, with a wide range of emotions from anxiety, worry, excitement, gratitude, uncertainty, strength, exhaustion, joy, fear and peace! It has been an intense day of reflecting/processing the miracle of Jackson's life-changing procedure yesterday! It has been overwhelming at times - not going to lie! Overwhelming in the sense of thanksgiving! Overwhelming in the sense of pure joy! Overwhelming in the sense of how great God's love, healing, grace, strength and peace are present in our lives! And overwhelming in the sense of how intense this storm has been...and the only way that we are still standing is because of the peace and strength we have in Christ - as He has demonstrated His Love, Guidance and Provision through all of you!
The trials in the last two weeks have been crazy - to say the least - but, God has given us an Advocate, Counselor, Comforter and Encourager in the Holy Spirit! And here is the Truth that has truly brought me to a point of surrender through out the day: Fear is the enemy of Faith! If I told you that through this whole journey there has not been moments of fear - I would be a hypocrite! Fear has been an emotional reaction that we have had to truly surrender time and time again, and today...we had to surrender this emtion again! Our faith has been tested like never before in this journey - and it is continuing to be tested! This journey is no where near over - and even as we sit on the other side of one of the greatest miracle I have ever witnessed with an attitude of praise...the enemy is not going to stop attacking! We must continue to remain surrendered at the foot of the Cross, and must stay prepared and focused in the Word as the enemy is going to bring every scheme possible to shift our eyes off of Jesus in this storm...and when/if you are experiencing moments of fear, timidity, worry or doubt...as we have in this storm - know that your eyes are not on the One who promises Life, Strength, Peace and Rescue! Christ taught us to deny/surrender our selfish desires [including fear] daily, pick up our cross and follow Him if we truly want to be His disciples!
Tonight...please continue to pray! Pray for Rest and Strength to cover Kelly and Jackson! Kelly has been getting out of bed and moving around this afternoon/evening, eating great (heck, she had pizza for dinner!) and is feeling much better! The doctors/nurses have gotten on top of her pain - eventhough she is still a little "itchy" and sore - and is doing so much better tonight compared to late last night and early this morning! As for Jackson...He is doing great! His heartbeat continues to be strong anywhere from 145-160 beats per minute - and continues to bounce around inside of Kel - a great praise, but also a point of pain for a sore mommy!
Pray for continued Peace and Patience as we continue to wait upon the Lord! The next four months - may very well be the longest four months of our lives! The "waiting" has just begun - and is another intense test for a man who loves to move at 300 mph! God teaches us "peace, be still", and that He leads us beside "still waters"...and many times there seems to be more fun and excitement in the "wake" rather than in the "still" waters, but this whole journey has been such a learning experience, and I/we will continue to lean into the prompting and teaching of the Holy Spirit! There is an overwhelming sense of peace that goes beyond all understanding, and the Lord is teaching this knucklehead a new definition of "stillness"! I am looking forward to "slowing down" and focusing on enjoying the blessing of today!
Our natural reaction to many of life's hurdles, trials, adversities and storms may be fear [whatever that fear may be] - but, peace...well, peace is the supernatural, divine response God gives us by His Grace through His Son! Choose to respond rather than react, because fear is the enemy of Faith. Stand firm on the Promise that Faith crushes Fear!
All Eyes on Jesus...
His instruments...
"But you are the ones chosen by God, chosen for the high calling of priestly work, chosen to be a holy people, God's instruments to do his work and speak out for him, to tell others of the night-and-day difference he made for you—from nothing to something, from rejected to accepted." [1 Peter 2: 9-10, The Message]
What a day yesterday! Our God is Seriously Ridiculous - and how awesome is His healing, provision, love and encouragement!
Last night - was rough though! Kelly had a very hard night with pain and discomfort following the procedure and general anesthesia. We were able to get a few hours of sleep, once we were transferred to a recovery room and Kelly was in a more comfortable bed. The doctor's woke us up early this morning and began to check Kelly and Jackson's progress. Kelly's pain medication seem to have "caught up" and the pain has substantially subsided! Jackson's heart beat has been steady through out the night between 145-160 beats per minute, and Kelly could feel him moving around throughout the night and early morning hours, as usual!
However, when Kel woke this morning she was overwhelmed with a great anxiety (to be expected) for Jackson - especially since she was so groggy through out the evening updates and was a little concerned since we have not had an echo since the procedure! We shared a great cry together and prayed over Jackson! We knew Dr. Speer was planning to stop at some point this morning, and so we were just going to wait and talk with him about plans for an echo/ultrasound - and as soon as we finished praying together the nurses station called us and shared the news that Dr. Sherman, Jackson's Cardiologist, was on his way to the room to do an echo and check Jackson's progress! How awesome is God's timing!
And as soon Dr. Sherman got set up and began the echo - in walked Dr. Speer! And what an awesome brother in Christ! You know how wonderful it is to have a team of doctors provide the level of care these guys have, with a foundation of faith! We could not have asked for a more wonderful team who truly have been the hands/talent/instrument of Christ in this procedure to intercede in Jackson's life!
Dr. Sherman and Speer were with us for more than a half hour, and the echo results are just awesome! Jackson is doing so well! The flow through the left ventricle is great! The echo confirmed that a huge improvement has been made in the flow through the aortic valve-which means "success" and a true miracle! Jackson is by know means out of the woods at this point - and the focus now is to watch his heart's development over the next 4 months. His aortic valve has been opened so much that it actually is a "leaky" valve now- which is expected with the procedure! The valve now has a chance to heal over the next four months in-utero, and/or may need to be replaced through a surgery at birth. If the valve deteriorates and/or the ventricle does not develop, the Norwood surgery process (series of surgeries starting at birth) may still be the next step! Right now it is just wait and see! Here is where the continued reinforcement in the foundation of prayer is going to be essential!
We will be having weekly echo's in Pittsburgh at this point - may be more/less frequent depending on Jackson's development - with our next echo this coming Wednesday! Kelly has about a six week recovery plan at this point, including no lifting, and most likely will be discharged tomorrow morning! Gonna be tough for an awesome mommy of two "cuddlers"! But-daddy is ready and excited to step up to the plate! And man, what an awesome team of support we have with our family, friends, church community and even strangers who are hearing the story and rallying with us!
To see the Body of Christ united and interceding is just absolutely awesome! And please - I beg you - keep your Eyes on Jesus! Don't give the enemy a crack to creep through! Don't let him speak discouragement, worry, doubt, fear into your lives - but live victoriously in the Death and Resurrection of our Lord - Christ Jesus - because there is Life in His Blood!
Someone made the comment last week that blood is thicker than water - and though it was not meant the way I am about to "unwrap" it - he is absolutely correct! The Blood of Jesus is stronger and thicker than anything this world can offer! Our relationships that stand on the foundation of Christ's Blood are stronger than any worldly friendship! And in the time of battle - the relationships we have in Christ's Blood are the ones that stand strong and build each other up in Love, Encouragement and the Truth found in the Word!
As Kelly stated so perfectly last night - "I don't even know how to begin to say thank you to Jesus for His blessing/miracle in Jackson!" and the same is true for all of you! We don't know how to even begin expressing our thankfulness and love towards you...we are so blessed that you are all "standing in the gap" with/for us and allowing the Lord to move in and through you!
We promise to keep you up to date through the blog - and sorry if you tried to call/txt last night or this morning...it was so intense and crazy, and then in the midst of it all my phone died! [Thanks Greg and Mel coming through in the clutch and bringing in a charger!!! And Stace and Rick - the early morning cup of coffee was exactly what I needed! Love you guys so much...]
Stay buried in the Word - and continue to Shout His Praise! You are His Instruments...tell the story of the night and day difference He has made in your life! And if you don't know Christ as Savior and the Lord of your Life - I beg you to talk with someone today - right now - or email/write/text/call me - go to church tonight or in the morning and talk with a pastor! It is a life or death decision - and again that is His Promise not mine! Read Romans 10 and Colossians 3 and come into relationship with Him today for the first time! It is not about Religion or Tradition...it is all about Relationship! And He still waits for you...and Loves you - just as you are! Stand firm on that Promise of the Lord - and don't let the world tell you otherwise!
All Eyes on Jesus...
What a day yesterday! Our God is Seriously Ridiculous - and how awesome is His healing, provision, love and encouragement!
Last night - was rough though! Kelly had a very hard night with pain and discomfort following the procedure and general anesthesia. We were able to get a few hours of sleep, once we were transferred to a recovery room and Kelly was in a more comfortable bed. The doctor's woke us up early this morning and began to check Kelly and Jackson's progress. Kelly's pain medication seem to have "caught up" and the pain has substantially subsided! Jackson's heart beat has been steady through out the night between 145-160 beats per minute, and Kelly could feel him moving around throughout the night and early morning hours, as usual!
However, when Kel woke this morning she was overwhelmed with a great anxiety (to be expected) for Jackson - especially since she was so groggy through out the evening updates and was a little concerned since we have not had an echo since the procedure! We shared a great cry together and prayed over Jackson! We knew Dr. Speer was planning to stop at some point this morning, and so we were just going to wait and talk with him about plans for an echo/ultrasound - and as soon as we finished praying together the nurses station called us and shared the news that Dr. Sherman, Jackson's Cardiologist, was on his way to the room to do an echo and check Jackson's progress! How awesome is God's timing!
And as soon Dr. Sherman got set up and began the echo - in walked Dr. Speer! And what an awesome brother in Christ! You know how wonderful it is to have a team of doctors provide the level of care these guys have, with a foundation of faith! We could not have asked for a more wonderful team who truly have been the hands/talent/instrument of Christ in this procedure to intercede in Jackson's life!
Dr. Sherman and Speer were with us for more than a half hour, and the echo results are just awesome! Jackson is doing so well! The flow through the left ventricle is great! The echo confirmed that a huge improvement has been made in the flow through the aortic valve-which means "success" and a true miracle! Jackson is by know means out of the woods at this point - and the focus now is to watch his heart's development over the next 4 months. His aortic valve has been opened so much that it actually is a "leaky" valve now- which is expected with the procedure! The valve now has a chance to heal over the next four months in-utero, and/or may need to be replaced through a surgery at birth. If the valve deteriorates and/or the ventricle does not develop, the Norwood surgery process (series of surgeries starting at birth) may still be the next step! Right now it is just wait and see! Here is where the continued reinforcement in the foundation of prayer is going to be essential!
We will be having weekly echo's in Pittsburgh at this point - may be more/less frequent depending on Jackson's development - with our next echo this coming Wednesday! Kelly has about a six week recovery plan at this point, including no lifting, and most likely will be discharged tomorrow morning! Gonna be tough for an awesome mommy of two "cuddlers"! But-daddy is ready and excited to step up to the plate! And man, what an awesome team of support we have with our family, friends, church community and even strangers who are hearing the story and rallying with us!
To see the Body of Christ united and interceding is just absolutely awesome! And please - I beg you - keep your Eyes on Jesus! Don't give the enemy a crack to creep through! Don't let him speak discouragement, worry, doubt, fear into your lives - but live victoriously in the Death and Resurrection of our Lord - Christ Jesus - because there is Life in His Blood!
Someone made the comment last week that blood is thicker than water - and though it was not meant the way I am about to "unwrap" it - he is absolutely correct! The Blood of Jesus is stronger and thicker than anything this world can offer! Our relationships that stand on the foundation of Christ's Blood are stronger than any worldly friendship! And in the time of battle - the relationships we have in Christ's Blood are the ones that stand strong and build each other up in Love, Encouragement and the Truth found in the Word!
As Kelly stated so perfectly last night - "I don't even know how to begin to say thank you to Jesus for His blessing/miracle in Jackson!" and the same is true for all of you! We don't know how to even begin expressing our thankfulness and love towards you...we are so blessed that you are all "standing in the gap" with/for us and allowing the Lord to move in and through you!
We promise to keep you up to date through the blog - and sorry if you tried to call/txt last night or this morning...it was so intense and crazy, and then in the midst of it all my phone died! [Thanks Greg and Mel coming through in the clutch and bringing in a charger!!! And Stace and Rick - the early morning cup of coffee was exactly what I needed! Love you guys so much...]
Stay buried in the Word - and continue to Shout His Praise! You are His Instruments...tell the story of the night and day difference He has made in your life! And if you don't know Christ as Savior and the Lord of your Life - I beg you to talk with someone today - right now - or email/write/text/call me - go to church tonight or in the morning and talk with a pastor! It is a life or death decision - and again that is His Promise not mine! Read Romans 10 and Colossians 3 and come into relationship with Him today for the first time! It is not about Religion or Tradition...it is all about Relationship! And He still waits for you...and Loves you - just as you are! Stand firm on that Promise of the Lord - and don't let the world tell you otherwise!
All Eyes on Jesus...
Friday, July 24, 2009
Life in the Blood...
"Who is this King of glory? The LORD strong and mighty, the LORD mighty in battle.
Lift up your heads, O you gates; lift them up, you ancient doors, that the King of glory may come in. Who is he, this King of glory? The LORD Almighty - he is the King of glory!" [Psalm 24:8-10]
This is the battle cry that I read this morning during an incredible "quiet hour" with the Lord! He gently leads us beside still waters...overflowing with peace that restores my soul! He guides us in paths of righteousness...for His Name's sake and even though we walk through the Valley of the Shadow of death...he goes before us! His Promise is Peace and Strength...and man was that Promise on display today!
The first miracle of the morning -was that Kelly and I were on time for our 10:00am check in! And many of you are probably laughing your heads off right now, because you realize how huge of a miracle that is! Lol...
But the miracles that followed - let them never be forgotten! So here is the scene...twelve of us in a circle in the 2nd floor waiting room at Magee Women's Hospital praying together as Kelly left the triage area around noon. It was a very difficult start to the process when the triage nurses (they even called in their specialist) could not get her IV started - and a huge thank you to Kathy for "standing in the gap" and covering Kelly's veins and nurses in prayer from the triage room! As Kelly headed to the OR to get Jackson in position...fervent prayers continued to be lifted! And when Kathy and Stacy both had to leave around 12:30...that left 10 guys sitting in the waiting room together in a women's hospital! It was awesome - here are 10 grown men (amazing brother's in Christ) laughing, crying, and praying together all afternoon! After several hours of trying to get the stubborn Baby Jackson in the perfect position (Kelly walking around, pushing and pulling on her stomach/uterus, laying on her side) and a ton of prayer being lifted - the Doctor's decided and moved forward with the laparscopy through Kelly's abdominal wall . They made a 6cm incision, just large enough for Dr. Speer to insert his hand and manipulate Kelly's uterus and hold Jackson in "perfect position". As soon as Dr. Speer got is hand in - Jackson settled down, presented his heart perfectly...and allowed Dr. Emery to insert the needle through Kelly's abdomen, into her uterus, right into Jackson's chest, on into the heart, and perfectly into his aorta! Dr. Croutzer immediately inserted the ballon device thru the needle, and ballooned Jackson's aorta two times...and pulled out! And immediately there was a positive change in the flow through the ventricle! How awesome is our God!!!!!! The flow through Jackson's aorta was restored/improved immediately - and in the words of Dr. Emery "once Jackson was in the perfect position-the procedure could not have gone better!" Truly God's miracle! And the emotional release of celebration/praise and thanksgiving was awesome! Our God is a God of life! And that Life flows through the blood of Jesus Christ!
Never before have Kelly and I been so overwhelmed with His Prescense, His Peace, His Love, Comfort and Care! He is our Healer! And as Dr. Speer and Emery reflected with Kelly and I in the recovery area - the emotion was intense! For the first time in the history of Pittsburgh's Children's and Magee Women's Hospitals was there a successful Fetal Aortic Balloon Valvioplasty and all Glory, Praise and Honor goes to Christ alone working from the foundation of prayer you all laid, to to the instruments and talent of our doctors, surgeon's and nurses! Praise God for the incredible team of Dr. Emery, Dr. Speer, Dr. Sherman, Dr. Croutzer and Dr. McCaffery! To see Him work in and through this team- was awesome!
Now...we are still not out of the woods! It is time to continue to focus and direct our prayers to Kelly and Jackson's recovery! Kel was a warrior today and I can't begin to tell you how proud I am of her strength and courage to surrender her life and comfort for Jackson's! She is in a lot of pain tonight from cramping following the manipulation of her uterus and the incision! Her cervix is firm - which is great, meaning no signs of pre-term delivery! Please pray for her health, rest, and comfort as she recovers through out the night! The recovery nurses/doctors have been amazing doing all they can to get her comfortable!
As for Jackson...his heart beat is strong and Kelly is able to feel him moving around inside her! How amazing is that? There are no signs at this point of any complications to/for him!
As we go through the night - our biggest need is prayers for Kelly's comfort, pain and rest! Thank you again for standing with us through this journey! And I can't wait to see how God continues to guide and direct our path! Soli Deo Gloria...
All Eyes on Jesus! He is The King of Glory!
Lift up your heads, O you gates; lift them up, you ancient doors, that the King of glory may come in. Who is he, this King of glory? The LORD Almighty - he is the King of glory!" [Psalm 24:8-10]
This is the battle cry that I read this morning during an incredible "quiet hour" with the Lord! He gently leads us beside still waters...overflowing with peace that restores my soul! He guides us in paths of righteousness...for His Name's sake and even though we walk through the Valley of the Shadow of death...he goes before us! His Promise is Peace and Strength...and man was that Promise on display today!
The first miracle of the morning -was that Kelly and I were on time for our 10:00am check in! And many of you are probably laughing your heads off right now, because you realize how huge of a miracle that is! Lol...
But the miracles that followed - let them never be forgotten! So here is the scene...twelve of us in a circle in the 2nd floor waiting room at Magee Women's Hospital praying together as Kelly left the triage area around noon. It was a very difficult start to the process when the triage nurses (they even called in their specialist) could not get her IV started - and a huge thank you to Kathy for "standing in the gap" and covering Kelly's veins and nurses in prayer from the triage room! As Kelly headed to the OR to get Jackson in position...fervent prayers continued to be lifted! And when Kathy and Stacy both had to leave around 12:30...that left 10 guys sitting in the waiting room together in a women's hospital! It was awesome - here are 10 grown men (amazing brother's in Christ) laughing, crying, and praying together all afternoon! After several hours of trying to get the stubborn Baby Jackson in the perfect position (Kelly walking around, pushing and pulling on her stomach/uterus, laying on her side) and a ton of prayer being lifted - the Doctor's decided and moved forward with the laparscopy through Kelly's abdominal wall . They made a 6cm incision, just large enough for Dr. Speer to insert his hand and manipulate Kelly's uterus and hold Jackson in "perfect position". As soon as Dr. Speer got is hand in - Jackson settled down, presented his heart perfectly...and allowed Dr. Emery to insert the needle through Kelly's abdomen, into her uterus, right into Jackson's chest, on into the heart, and perfectly into his aorta! Dr. Croutzer immediately inserted the ballon device thru the needle, and ballooned Jackson's aorta two times...and pulled out! And immediately there was a positive change in the flow through the ventricle! How awesome is our God!!!!!! The flow through Jackson's aorta was restored/improved immediately - and in the words of Dr. Emery "once Jackson was in the perfect position-the procedure could not have gone better!" Truly God's miracle! And the emotional release of celebration/praise and thanksgiving was awesome! Our God is a God of life! And that Life flows through the blood of Jesus Christ!
Never before have Kelly and I been so overwhelmed with His Prescense, His Peace, His Love, Comfort and Care! He is our Healer! And as Dr. Speer and Emery reflected with Kelly and I in the recovery area - the emotion was intense! For the first time in the history of Pittsburgh's Children's and Magee Women's Hospitals was there a successful Fetal Aortic Balloon Valvioplasty and all Glory, Praise and Honor goes to Christ alone working from the foundation of prayer you all laid, to to the instruments and talent of our doctors, surgeon's and nurses! Praise God for the incredible team of Dr. Emery, Dr. Speer, Dr. Sherman, Dr. Croutzer and Dr. McCaffery! To see Him work in and through this team- was awesome!
Now...we are still not out of the woods! It is time to continue to focus and direct our prayers to Kelly and Jackson's recovery! Kel was a warrior today and I can't begin to tell you how proud I am of her strength and courage to surrender her life and comfort for Jackson's! She is in a lot of pain tonight from cramping following the manipulation of her uterus and the incision! Her cervix is firm - which is great, meaning no signs of pre-term delivery! Please pray for her health, rest, and comfort as she recovers through out the night! The recovery nurses/doctors have been amazing doing all they can to get her comfortable!
As for Jackson...his heart beat is strong and Kelly is able to feel him moving around inside her! How amazing is that? There are no signs at this point of any complications to/for him!
As we go through the night - our biggest need is prayers for Kelly's comfort, pain and rest! Thank you again for standing with us through this journey! And I can't wait to see how God continues to guide and direct our path! Soli Deo Gloria...
All Eyes on Jesus! He is The King of Glory!
Thursday, July 23, 2009
The Game Plan...
"Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name...and even when I walk through the darkest valley, I will not be afraid, for you are close beside me. [Psalm 100:4 and 23:4]
Tomorrow...stand firm with me on this Promise of the Lord! Imagine David...standing before Goliath with five smooth stones and a slingshot...well tomorrow, we have a team of doctor's with a needle, a balloon and aiming for a space that is a thick as a dime - not the diameter, turn it on its side and the thickness is what they are going for! But hey...Our God is still in the Giant killing business! He still moves mountains...we just have to believe - even if our faith is as small as a mustard seed! Again...His Promise - not mine!
Here is the game plan for tomorrow...by the way, the moving company beat us to our house this morning, had already started the patio and shed when we arrived - and everything was out before 11:00am...and after 3 hours of "sweat equity" and cleaning, we rolled out of 200 Andrew Drive for the last time! Dropped the closing check and keys off with our agent...and everything is set for the closing on our home tomorrow morning! Kinda crazy that we close tomorrow on a home that has been such a blessing to us for the last 5+ years, and at the same time face Jackson's surgery! But again...God is good, and we continue to "lean in" to His Grace, Peace and Strength! He is all over this! But I will tell you...if you look towards Pittsburgh tomorrow morning, you may see a Revival occurring, because of your prayers! I am telling you...God is up to something huge in our City - and Greater things are yet to come!
Sorry, another A.D.D moment there - back to the game plan:
(8:30am) Leave the Farm in Dayton and travel to Pittsburgh
(10:00am) Arrive at Magee Women's Hospital and have an Echo-cardiogram
(11:00am) Meet with the team of Doctor's and they will begin to prep Kelly
(12:00am) Start of the procedure - prep the O.R. and team of doctor's/nurses.
(1:00pm) The Procedure...if all goes well, and Jackson is in the "perfect position", the procedure will last less than 15 minutes. Dr. Emery will enter through Kelly's abdomen with a needle, through her uterus -similar to an Amniocentesis - enter Jackson's chest, into the left side of his heart, and then into the Aorta. At that point, Dr. Croutzer will place a "balloon" device into the needle and "balloon" open the Aorta/Aortic Valve to "hopefully" restore flow out of the left ventricle! And again if all goes well...they will observe Kelly for a few hours and then we will be back at the farm tomorrow night! If there are complications - or Jackson is not in the perfect position - the O.R. prep will be much longer, and if they need to do a laparoscopy on Kelly - where they cut open her abdominal wall and hand manipulate her uterus to position Jackson - we will be in the hospital for several days.
We have a tremendous team of prayer warriors arriving through out the day - and we ask that you continue to join us in prayer - as we will be praying over the Doctor's, Kelly and Jackson through the entirety of the procedure! I will try to update the blog at some point tomorrow afternoon/evening - but, will have access to Facebook via my Blackberry and will be updating our status regularly throughout the morning with specific prayers and praises!
Specific Prayer Requests:
1. Jackson to be in the perfect position for the procedure!
2. God's strength, peace and wisdom to cover us, you and the team of Doctor's
3. That the Closing happens with out any hitches!
4. God's Glory to be Revealed!
A couple of years ago, I was reading in Oswald Chamber's, "My Upmost for His Highest" and remember one devotion specifically tonight! He shared that we never know the "particular" way that God is going to show up - but you can count on one thing...that He will! All Glory and Honor to His Name alone today, tomorrow and forever more! Every knee will bow - those who believe and those who don't - to the Name above all names! As we head into battle tomorrow - please be sure to put on the full armour of God and dive into the Word!
We love you all, and are so thankful that you are standing with us in the midst of this storm!
All Eyes on Jesus...
Tomorrow...stand firm with me on this Promise of the Lord! Imagine David...standing before Goliath with five smooth stones and a slingshot...well tomorrow, we have a team of doctor's with a needle, a balloon and aiming for a space that is a thick as a dime - not the diameter, turn it on its side and the thickness is what they are going for! But hey...Our God is still in the Giant killing business! He still moves mountains...we just have to believe - even if our faith is as small as a mustard seed! Again...His Promise - not mine!
Here is the game plan for tomorrow...by the way, the moving company beat us to our house this morning, had already started the patio and shed when we arrived - and everything was out before 11:00am...and after 3 hours of "sweat equity" and cleaning, we rolled out of 200 Andrew Drive for the last time! Dropped the closing check and keys off with our agent...and everything is set for the closing on our home tomorrow morning! Kinda crazy that we close tomorrow on a home that has been such a blessing to us for the last 5+ years, and at the same time face Jackson's surgery! But again...God is good, and we continue to "lean in" to His Grace, Peace and Strength! He is all over this! But I will tell you...if you look towards Pittsburgh tomorrow morning, you may see a Revival occurring, because of your prayers! I am telling you...God is up to something huge in our City - and Greater things are yet to come!
Sorry, another A.D.D moment there - back to the game plan:
(8:30am) Leave the Farm in Dayton and travel to Pittsburgh
(10:00am) Arrive at Magee Women's Hospital and have an Echo-cardiogram
(11:00am) Meet with the team of Doctor's and they will begin to prep Kelly
(12:00am) Start of the procedure - prep the O.R. and team of doctor's/nurses.
(1:00pm) The Procedure...if all goes well, and Jackson is in the "perfect position", the procedure will last less than 15 minutes. Dr. Emery will enter through Kelly's abdomen with a needle, through her uterus -similar to an Amniocentesis - enter Jackson's chest, into the left side of his heart, and then into the Aorta. At that point, Dr. Croutzer will place a "balloon" device into the needle and "balloon" open the Aorta/Aortic Valve to "hopefully" restore flow out of the left ventricle! And again if all goes well...they will observe Kelly for a few hours and then we will be back at the farm tomorrow night! If there are complications - or Jackson is not in the perfect position - the O.R. prep will be much longer, and if they need to do a laparoscopy on Kelly - where they cut open her abdominal wall and hand manipulate her uterus to position Jackson - we will be in the hospital for several days.
We have a tremendous team of prayer warriors arriving through out the day - and we ask that you continue to join us in prayer - as we will be praying over the Doctor's, Kelly and Jackson through the entirety of the procedure! I will try to update the blog at some point tomorrow afternoon/evening - but, will have access to Facebook via my Blackberry and will be updating our status regularly throughout the morning with specific prayers and praises!
Specific Prayer Requests:
1. Jackson to be in the perfect position for the procedure!
2. God's strength, peace and wisdom to cover us, you and the team of Doctor's
3. That the Closing happens with out any hitches!
4. God's Glory to be Revealed!
A couple of years ago, I was reading in Oswald Chamber's, "My Upmost for His Highest" and remember one devotion specifically tonight! He shared that we never know the "particular" way that God is going to show up - but you can count on one thing...that He will! All Glory and Honor to His Name alone today, tomorrow and forever more! Every knee will bow - those who believe and those who don't - to the Name above all names! As we head into battle tomorrow - please be sure to put on the full armour of God and dive into the Word!
We love you all, and are so thankful that you are standing with us in the midst of this storm!
All Eyes on Jesus...
Wednesday, July 22, 2009
Jackson's anointing in Family Christian Book Store!
Now this is AWESOME - and only God...
So Kelly is out running errands and making returns at Lowes, Home Depot, Dick's, Toys R Us and other stores...and just so happens to go into one of our favorite stores in Cranberry Twp - Family Christian Book Store! [This store was not on her list of stops...but, you know how it is - you never know what is going to happen when you all go shopping...]
So she is standing in line to check out [she never told me what she was buying...] and the cashier - who we see there often, and is just the nicest guy - ask Kel when she is due and how the pregnancy is going. Kelly begins to share story, asks him to pray for us and hands him a "Pray for Baby Jackson" card - which to he then responds..."I can do one better - let's pray right now!" So he, and all the people standing in line to check out, and several others in the store, gather around/lay hands on Kelly and pray over her and Jackson! How awesome is that...but, the story doesn't end!
Just so happens that a Pastor was standing in line, asks for Kelly to hold on a minute...runs and grabs oil, and anoints her and Jackson!!!! Come'on...How awesome is our God!!!!!!!!!!! Unity of the Body through the bond of Peace - in Action!!!! [Ephesians 4]
You never know when God is going to show up or through whom - just keep your Eyes on Jesus, and stand firm on His Promises!
And just so you know...miraculously, a friend from National City Bank here in the Pittsburgh area - just called a couple of minutes ago and he has taken care of the financial "hiccup" in the closing process! Come'on...Praise the Lord!
All Eyes on Jesus...
So Kelly is out running errands and making returns at Lowes, Home Depot, Dick's, Toys R Us and other stores...and just so happens to go into one of our favorite stores in Cranberry Twp - Family Christian Book Store! [This store was not on her list of stops...but, you know how it is - you never know what is going to happen when you all go shopping...]
So she is standing in line to check out [she never told me what she was buying...] and the cashier - who we see there often, and is just the nicest guy - ask Kel when she is due and how the pregnancy is going. Kelly begins to share story, asks him to pray for us and hands him a "Pray for Baby Jackson" card - which to he then responds..."I can do one better - let's pray right now!" So he, and all the people standing in line to check out, and several others in the store, gather around/lay hands on Kelly and pray over her and Jackson! How awesome is that...but, the story doesn't end!
Just so happens that a Pastor was standing in line, asks for Kelly to hold on a minute...runs and grabs oil, and anoints her and Jackson!!!! Come'on...How awesome is our God!!!!!!!!!!! Unity of the Body through the bond of Peace - in Action!!!! [Ephesians 4]
You never know when God is going to show up or through whom - just keep your Eyes on Jesus, and stand firm on His Promises!
And just so you know...miraculously, a friend from National City Bank here in the Pittsburgh area - just called a couple of minutes ago and he has taken care of the financial "hiccup" in the closing process! Come'on...Praise the Lord!
All Eyes on Jesus...
The Move...
"But you, O Lord, are a God of compassion and mercy, slow to get angry and filled with unfailing love and faithfulness." [Psalm 86:15]
Today is the day! JW brought a team of movers with him this morning - and all I hear is footsteps back and forth from the house to the truck, wrapping paper securing items as they are placed in boxes, and grunts as they lift the boxes! Talk about a team operation...these guys are something to study for all you students of leadership and management! They have the upstairs completely packed/loaded on the truck...within an hour...and are now packing the rest of the main floor and heading here to the basement/office/family room soon! Afraid if I don't get out of the way I will be in a box and on the truck!
Please continue to pray for these guys and the move! They are such a blessing - as I am sure you can imagine! Also...please join me in praying for the final document/financial preparation for the closing on Friday. I ran into some "glitches" in the banking world with our credit union this morning - but God! Just another opportunity for God to demonstrate His Power, Glory and Majesty! [2 Corinthians 4:7-12] We get discouraged, perplexed, knocked down, and face death because we serve Jesus...but we are not crushed, not driven to despair, or destroyed because we who have also shared in His Death and Resurrection - sweetly broken and wholly surrendered before His Cross - as we have repented and confessed of our sin, asking for His forgiveness and inviting Him into our lives as Lord and Savior are Redeemed...and we are able to live victoriously because of His Death and Resurrection! [Romans 10]
A wise man shared with Kelly and I last night ... that the preparation for battle is the tough part, but the battle is what we live for...and don't forget the War has already been won! Christ conquered sin and death! PTL...(that's Praise the Lord ya'all!)
Love you all...and can't wait to see how God continues to move through today and the rest of the week!
All Eyes on Jesus!
[P.S. May not be able to update the blog until tomorrow - with the move and all...and not sure what time we will be arriving at the farm and where/when I will be able to get on to the internet! But, I promise an update as soon as possible! Peace...]
Today is the day! JW brought a team of movers with him this morning - and all I hear is footsteps back and forth from the house to the truck, wrapping paper securing items as they are placed in boxes, and grunts as they lift the boxes! Talk about a team operation...these guys are something to study for all you students of leadership and management! They have the upstairs completely packed/loaded on the truck...within an hour...and are now packing the rest of the main floor and heading here to the basement/office/family room soon! Afraid if I don't get out of the way I will be in a box and on the truck!
Please continue to pray for these guys and the move! They are such a blessing - as I am sure you can imagine! Also...please join me in praying for the final document/financial preparation for the closing on Friday. I ran into some "glitches" in the banking world with our credit union this morning - but God! Just another opportunity for God to demonstrate His Power, Glory and Majesty! [2 Corinthians 4:7-12] We get discouraged, perplexed, knocked down, and face death because we serve Jesus...but we are not crushed, not driven to despair, or destroyed because we who have also shared in His Death and Resurrection - sweetly broken and wholly surrendered before His Cross - as we have repented and confessed of our sin, asking for His forgiveness and inviting Him into our lives as Lord and Savior are Redeemed...and we are able to live victoriously because of His Death and Resurrection! [Romans 10]
A wise man shared with Kelly and I last night ... that the preparation for battle is the tough part, but the battle is what we live for...and don't forget the War has already been won! Christ conquered sin and death! PTL...(that's Praise the Lord ya'all!)
Love you all...and can't wait to see how God continues to move through today and the rest of the week!
All Eyes on Jesus!
[P.S. May not be able to update the blog until tomorrow - with the move and all...and not sure what time we will be arriving at the farm and where/when I will be able to get on to the internet! But, I promise an update as soon as possible! Peace...]
Tuesday, July 21, 2009
The Procedure...
"The disciples were filled with joy, and with the Holy Spirit!" [Acts 13:52]
Time to mobilize all you prayer warriors! We received word this afternoon that Dr. Emery, after discussing with Dr. Sherman the results of yesterday mornings echo, is moving the procedure up to this Friday! They were hoping to allow Jackson two more weeks of development and strength - but, after seeing that the left side of his heart has not grown in the last two weeks, they are mobilizing their team!
The procedure will take place at Magee Women's Hospital in Pittsburgh this Friday around noon. Kelly will have an echo Friday morning, just to get a "game day look" and then they will prep Kel in the O.R. with the procedure taking place somewhere around noon. The key right now is for Jackson to be positioned "perfectly" Friday morning! When I asked Dr. Emery this afternoon what we could be doing to get prepared, his response; "You are already doing it! You have Faith!" And we do! We are filled with joy, that God has appointed and positioned this team of doctors to be His instruments and reveal His Glory, Majesty, Power and Provision!
So here is the plan...Wednesday, finish packing and move! Thursday, finish the move/clean and rest! Friday, at the hospital around 9:00am for an echo, the Fetal Aortic Balloon Valvuloplasty procedure around noon...and if/when all goes well, back at the farm for a Holy Ghost Party! Please rally all the prayer warriors you can...and ask in His Name that the Son - Christ Jesus - brings glory to the Father on Friday through Jackson, Kelly, Dr. Emery, Dr. Sherman, Dr. Speer, Dr. Croutzer, Dr. McCaffery, the whole team of nurses and through each and every one of you!!!
[God I ask that you continue to open our eyes so we can see you at work! God, continue to open our ears so we can hear your voice of Truth! And God, open up our hearts - right now - so we can come to know your Son - our Lord and Savior - more as we dive into your Word!]
And that is my plea with you tonight...dive into His Word and let it engage, encourage and equip you, so that others may see Christ - His Love, His Joy, and His Peace - in your life! This world needs you to share the Love of Christ and Shine forth His Light in your life! Let the Holy Spirit lead you in prayer...and please know how much all your prayers mean! To see God demonstrate Himself over the last couple of hours/days - has been amazing! And don't ever give up on God-no matter what you are facing...because He never gives up on you!
Please continue to pray... and remember, our prayer must be for God's glory and purpose! For His Will not ours! Soli deo Gloria - to God be the Glory alone! Stand firm on what Christ taught us in John 14:13, that "YOU can ask for anything in my name, and I will do it, so that the Son can bring glory to the Father."
Praise His Name - and Keep Your Eyes on Jesus!
Time to mobilize all you prayer warriors! We received word this afternoon that Dr. Emery, after discussing with Dr. Sherman the results of yesterday mornings echo, is moving the procedure up to this Friday! They were hoping to allow Jackson two more weeks of development and strength - but, after seeing that the left side of his heart has not grown in the last two weeks, they are mobilizing their team!
The procedure will take place at Magee Women's Hospital in Pittsburgh this Friday around noon. Kelly will have an echo Friday morning, just to get a "game day look" and then they will prep Kel in the O.R. with the procedure taking place somewhere around noon. The key right now is for Jackson to be positioned "perfectly" Friday morning! When I asked Dr. Emery this afternoon what we could be doing to get prepared, his response; "You are already doing it! You have Faith!" And we do! We are filled with joy, that God has appointed and positioned this team of doctors to be His instruments and reveal His Glory, Majesty, Power and Provision!
So here is the plan...Wednesday, finish packing and move! Thursday, finish the move/clean and rest! Friday, at the hospital around 9:00am for an echo, the Fetal Aortic Balloon Valvuloplasty procedure around noon...and if/when all goes well, back at the farm for a Holy Ghost Party! Please rally all the prayer warriors you can...and ask in His Name that the Son - Christ Jesus - brings glory to the Father on Friday through Jackson, Kelly, Dr. Emery, Dr. Sherman, Dr. Speer, Dr. Croutzer, Dr. McCaffery, the whole team of nurses and through each and every one of you!!!
[God I ask that you continue to open our eyes so we can see you at work! God, continue to open our ears so we can hear your voice of Truth! And God, open up our hearts - right now - so we can come to know your Son - our Lord and Savior - more as we dive into your Word!]
And that is my plea with you tonight...dive into His Word and let it engage, encourage and equip you, so that others may see Christ - His Love, His Joy, and His Peace - in your life! This world needs you to share the Love of Christ and Shine forth His Light in your life! Let the Holy Spirit lead you in prayer...and please know how much all your prayers mean! To see God demonstrate Himself over the last couple of hours/days - has been amazing! And don't ever give up on God-no matter what you are facing...because He never gives up on you!
Please continue to pray... and remember, our prayer must be for God's glory and purpose! For His Will not ours! Soli deo Gloria - to God be the Glory alone! Stand firm on what Christ taught us in John 14:13, that "YOU can ask for anything in my name, and I will do it, so that the Son can bring glory to the Father."
Praise His Name - and Keep Your Eyes on Jesus!
The Pack...
What a morning! Kel and I were up and at em' early...since little Miss Jordyn decided she was getting an early start (6:15am!!! - Woo Hoo!) That girl is nuts - she is wired 220 or maybe even 440, don't know where she gets that from! And the first thing out of her mouth this morning..."daddy"! She knew something was up...
Kel and I finished up the prelim packing early this morning...and a huge blessing rang the door bell at 9:00am! One lone guy from the moving company introduces himself as JW. He shared that he was the "scouting crew" to come and begin packing today - with a team coming tomorrow to finish up the pack and then load/move. But, don't be deceived...this dude can pack! He had Carter and Jordyn's room packed completely in an hour, and the dining room and closets finished before lunch! It would have taken me two days to do what he accomplished in three hours! Heck, he packed three rooms and four closets in the same time it took me to pack half my office! I think it may have something to do with the way that Kel keeps an incredibly clean/organized home, while Doug not so much of incredibly clean/organized office! But it is all good...and talk about a weight lifted from our shoulders! Praise the Lord!
No update at this point on Jackson's procedure or the timing of everything this week and next...but, as soon as we find out, we will be sure to share it here on the blog!
I hope you are having an awesome day - and keep your Eyes on Jesus!
Kel and I finished up the prelim packing early this morning...and a huge blessing rang the door bell at 9:00am! One lone guy from the moving company introduces himself as JW. He shared that he was the "scouting crew" to come and begin packing today - with a team coming tomorrow to finish up the pack and then load/move. But, don't be deceived...this dude can pack! He had Carter and Jordyn's room packed completely in an hour, and the dining room and closets finished before lunch! It would have taken me two days to do what he accomplished in three hours! Heck, he packed three rooms and four closets in the same time it took me to pack half my office! I think it may have something to do with the way that Kel keeps an incredibly clean/organized home, while Doug not so much of incredibly clean/organized office! But it is all good...and talk about a weight lifted from our shoulders! Praise the Lord!
No update at this point on Jackson's procedure or the timing of everything this week and next...but, as soon as we find out, we will be sure to share it here on the blog!
I hope you are having an awesome day - and keep your Eyes on Jesus!
Monday, July 20, 2009
Breakthrough...
"My child, never forget the things I have taught you. Store my commands in your heart. If you do this, you will live many years, and your life will be satisfying. Never let loyalty and kindness leave you! Tie them around your neck as a reminder. Write them deep within your heart. Then you will find favor with both God and people, and you will earn a good reputation.
Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take." [Proverbs 3:1-6]
I know many of you have been asking or maybe just wondering; "You only have 4 days to close on the house, what are you going to do?" "Don't you think it is time to make a decision?" "Where are you going to live?" "What are your decisions?" ... well, here come the decisions.
First, let me say thank you! Thank you for your prayers of wisdom, strength, clarity and direction! The Peace and Grace of our Heavenly Father has been overwhelming in the last several weeks...and I must share with, we will continue to wait upon His - Perfect - Timing and Will, we will continue to follow Christ - denying our selfish desires, picking up our cross, and following Him wherever He calls us - even if that means waiting until the last minute. The Word teaches us to be "anxious in nothing", and so many times the world tells us to "pull the trigger" or "throw the pass" even when we know it is not right! And that pressure has been there - intensely - over the last three days specifically, but last night was a night of breakthrough and surrender. Followed by peace and clarity...two necessary elements to make a wise decision!
Jackson Update: This morning we met with our team of doctors and had another echo-cardiogram to check Jackson's heart. The doctors found that the left side of his heart has stopped growing - meaning the measurements taken this morning are the same as they were two weeks ago. This is both good and bad news.
Good news: The diagnosis of Dr. Speer, Dr. Sherman and Dr. Emery two Thursday's ago is spot on - and are extremely encouraged by the early detection! This morning's findings confirm Jackson does have Aortic Stenosis currently, which is the root of his Hypoplastic Left Heart Syndrome. So the care, strategy and preparation over the last two weeks is a great foundation to work from to save Jackson's life.
Bad news: Flow equals Grow - is the best way to explain it! Since there is no flow or squeeze in the left ventricle, the left side of the heart/the muscle is not going to grow anymore - unless there is an intervention. If we would not proceed with the Fetal Aortic Balloon Valveioplasty procedure, the left side of the heart would stay the same as it is today - with no function at birth - while the right side of the heart would continue to develop over the next twenty weeks.
The Great News (and it is always Great News)...as that the Lord has led and given us great peace in the decision to move forward with the experimental procedure - with an overwhelming peace, clarity and confidence to have the procedure completed right here in Pittsburgh! As Kelly quoted: "We have the superbowl champions and NHL champions this year - why not one more for the city!"
So a team of doctors and surgeons from Pittsburgh's Childrens Hospital, led by Dr. Emery and Dr. Sherman, are currently pulling all the pieces/plans together for the procedure to happen in Magee Women's Hospital, under the oversight of Dr. Speer, within the next week or so. Because the doctors found this morning that the left side of Jackson's heart has stopped "growing" - they have moved up the procedure date by at least a week. We could have the procedure as early as this week, Friday the 24th or as late as next Friday - needless to say...the next 10 days are going to be intense! As soon as we know the date from the doctors, we will be sure to let you know!
Move Update: This morning's news affirmed and clarified our decision regarding the move, after a weekend of focused prayer and pleas for the Lord to give us direction, rescue, clarity and peace! And man, did He ever deliver! A crew is coming to pack tomorrow morning at 9:00am, another crew will come to move us on Wednesday, and Thursday will be a day of final moving/cleaning, with the closing on Friday. A moving company has offered to store our stuff for an indefinite period of time - free of charge, and so we will be heading to my parent's farm home outside of Kittanning, PA - a small/country town called Dayton, PA - as a place of retreat and sanctuary to get us through the next couple of weeks and Jackson's procedure. Our plan is to stay there temporarily until the Lord directs us to the home He is preparing for us - in His timing!
We have yielded and are following His lead to this place of refuge and an opportunity to catch our breath, and I ask that you please continue to cover us in prayer in the move, and that we continue to yield to the Holy Spirit's leading in our life as to location, direction, and the home! We have an overwhelming sense of peace that this is where God is calling us to "land" for a couple of weeks, and we will remain in a state of prayer - as it is the foundation to Wisdom and Strength!
We serve an Awesome God - and we lean not on our own understanding, but it accept it by faith, that as we seek His Will for our lives, He will show us what path to take...even if it is last minute!
All Eyes on Jesus!
Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take." [Proverbs 3:1-6]
I know many of you have been asking or maybe just wondering; "You only have 4 days to close on the house, what are you going to do?" "Don't you think it is time to make a decision?" "Where are you going to live?" "What are your decisions?" ... well, here come the decisions.
First, let me say thank you! Thank you for your prayers of wisdom, strength, clarity and direction! The Peace and Grace of our Heavenly Father has been overwhelming in the last several weeks...and I must share with, we will continue to wait upon His - Perfect - Timing and Will, we will continue to follow Christ - denying our selfish desires, picking up our cross, and following Him wherever He calls us - even if that means waiting until the last minute. The Word teaches us to be "anxious in nothing", and so many times the world tells us to "pull the trigger" or "throw the pass" even when we know it is not right! And that pressure has been there - intensely - over the last three days specifically, but last night was a night of breakthrough and surrender. Followed by peace and clarity...two necessary elements to make a wise decision!
Jackson Update: This morning we met with our team of doctors and had another echo-cardiogram to check Jackson's heart. The doctors found that the left side of his heart has stopped growing - meaning the measurements taken this morning are the same as they were two weeks ago. This is both good and bad news.
Good news: The diagnosis of Dr. Speer, Dr. Sherman and Dr. Emery two Thursday's ago is spot on - and are extremely encouraged by the early detection! This morning's findings confirm Jackson does have Aortic Stenosis currently, which is the root of his Hypoplastic Left Heart Syndrome. So the care, strategy and preparation over the last two weeks is a great foundation to work from to save Jackson's life.
Bad news: Flow equals Grow - is the best way to explain it! Since there is no flow or squeeze in the left ventricle, the left side of the heart/the muscle is not going to grow anymore - unless there is an intervention. If we would not proceed with the Fetal Aortic Balloon Valveioplasty procedure, the left side of the heart would stay the same as it is today - with no function at birth - while the right side of the heart would continue to develop over the next twenty weeks.
The Great News (and it is always Great News)...as that the Lord has led and given us great peace in the decision to move forward with the experimental procedure - with an overwhelming peace, clarity and confidence to have the procedure completed right here in Pittsburgh! As Kelly quoted: "We have the superbowl champions and NHL champions this year - why not one more for the city!"
So a team of doctors and surgeons from Pittsburgh's Childrens Hospital, led by Dr. Emery and Dr. Sherman, are currently pulling all the pieces/plans together for the procedure to happen in Magee Women's Hospital, under the oversight of Dr. Speer, within the next week or so. Because the doctors found this morning that the left side of Jackson's heart has stopped "growing" - they have moved up the procedure date by at least a week. We could have the procedure as early as this week, Friday the 24th or as late as next Friday - needless to say...the next 10 days are going to be intense! As soon as we know the date from the doctors, we will be sure to let you know!
Move Update: This morning's news affirmed and clarified our decision regarding the move, after a weekend of focused prayer and pleas for the Lord to give us direction, rescue, clarity and peace! And man, did He ever deliver! A crew is coming to pack tomorrow morning at 9:00am, another crew will come to move us on Wednesday, and Thursday will be a day of final moving/cleaning, with the closing on Friday. A moving company has offered to store our stuff for an indefinite period of time - free of charge, and so we will be heading to my parent's farm home outside of Kittanning, PA - a small/country town called Dayton, PA - as a place of retreat and sanctuary to get us through the next couple of weeks and Jackson's procedure. Our plan is to stay there temporarily until the Lord directs us to the home He is preparing for us - in His timing!
We have yielded and are following His lead to this place of refuge and an opportunity to catch our breath, and I ask that you please continue to cover us in prayer in the move, and that we continue to yield to the Holy Spirit's leading in our life as to location, direction, and the home! We have an overwhelming sense of peace that this is where God is calling us to "land" for a couple of weeks, and we will remain in a state of prayer - as it is the foundation to Wisdom and Strength!
We serve an Awesome God - and we lean not on our own understanding, but it accept it by faith, that as we seek His Will for our lives, He will show us what path to take...even if it is last minute!
All Eyes on Jesus!
Sunday, July 19, 2009
Bended knee...
...I need you Jesus, to come to my rescue. Where else can I go? No other name by, which I am saved. Capture me with grace! I will follow you... ["Rescue"]
Absolutely one of my favorite songs - and like never before, these lyrics in church this morning brought me to my knees! This whole storm is just so intense - and "this world has nothing for me" - and as we approach His Cross on bended knee, we just plea that He comes to our Rescue. He is the Way, The Truth and The Life, and there is no other way to come to the Father, but through Him. Capture me with Grace Lord...and thank you Pastor Kent for an absolutely powerful message from James chapter 4! Talk about God speaking to and through you...
This weekend has been tough...good-byes with neighbors, cries of desperation, tough decisions regarding Jackson's surgery, finishing up repairs to the house with the home inspection, praying through this entire move, wondering where we are going, Carter and Jordyn struggling - and not fully understanding (Praise God) that their world is going to be rocked in a few days, exhausted, and many other emotions...BUT, in the midst of all that - check this out!
Move Update... So, we get the estimate from the moving company right, and between you and me -$4600 is crazy! And it would be absolutely poor stewardship on our part, and we have/had no peace that we were to spend that kind of money on packing and moving this house! And so as discouraging as that estimate was...here comes God! So we get a phone call yesterday afternoon from my Aunt, who had been in contact with a distant cousin who she is great friends with and owns a moving company in SC. Come to find out she has a brother-in law who co-owns a moving company here in the Pittsburgh area and they are sending out a crew on Tuesday to pack us, and then another crew on Wednesday to move us, and store our stuff if necessary - and the only expense to us is the "man hours"! How sweet is that! Talk about a huge blessing and what a weight that has been lifted! So we will do some "prelim" packing today and tomorrow and then full steam ahead on Tuesday and Wednesday! Now...if we only knew where to put our stuff! So please, continue to pray for peace, clarity and direction! We are praying through a couple of "leads"/options from friends and family...and hopefully will know where, real soon! He is our Everlasting God, Our Deliverer and remember "strength will rise as we wait upon the Lord!" And that is exactly what we will continue to do...wait upon the Lord, humbled before His Throne of Grace!
Jackson Update: Tomorrow morning, we have our weekly echo at Magee Womens Hospital and will be making the final decision as to "where" and set-up a preliminary game plan for the procedure/surgery. Please continue to hold this decision up in prayer and also our conversation with our team of doctors!
Again...thank you! Thank you for all your prayers, love, support, gifts, encouragement, dinners, time, energy and talent! Thank you for continuing to let God work in and through you, and please don't ever stop reflecting the Glory and Image of Christ in all you do! We love you...
All Eyes on Jesus!
Absolutely one of my favorite songs - and like never before, these lyrics in church this morning brought me to my knees! This whole storm is just so intense - and "this world has nothing for me" - and as we approach His Cross on bended knee, we just plea that He comes to our Rescue. He is the Way, The Truth and The Life, and there is no other way to come to the Father, but through Him. Capture me with Grace Lord...and thank you Pastor Kent for an absolutely powerful message from James chapter 4! Talk about God speaking to and through you...
This weekend has been tough...good-byes with neighbors, cries of desperation, tough decisions regarding Jackson's surgery, finishing up repairs to the house with the home inspection, praying through this entire move, wondering where we are going, Carter and Jordyn struggling - and not fully understanding (Praise God) that their world is going to be rocked in a few days, exhausted, and many other emotions...BUT, in the midst of all that - check this out!
Move Update... So, we get the estimate from the moving company right, and between you and me -$4600 is crazy! And it would be absolutely poor stewardship on our part, and we have/had no peace that we were to spend that kind of money on packing and moving this house! And so as discouraging as that estimate was...here comes God! So we get a phone call yesterday afternoon from my Aunt, who had been in contact with a distant cousin who she is great friends with and owns a moving company in SC. Come to find out she has a brother-in law who co-owns a moving company here in the Pittsburgh area and they are sending out a crew on Tuesday to pack us, and then another crew on Wednesday to move us, and store our stuff if necessary - and the only expense to us is the "man hours"! How sweet is that! Talk about a huge blessing and what a weight that has been lifted! So we will do some "prelim" packing today and tomorrow and then full steam ahead on Tuesday and Wednesday! Now...if we only knew where to put our stuff! So please, continue to pray for peace, clarity and direction! We are praying through a couple of "leads"/options from friends and family...and hopefully will know where, real soon! He is our Everlasting God, Our Deliverer and remember "strength will rise as we wait upon the Lord!" And that is exactly what we will continue to do...wait upon the Lord, humbled before His Throne of Grace!
Jackson Update: Tomorrow morning, we have our weekly echo at Magee Womens Hospital and will be making the final decision as to "where" and set-up a preliminary game plan for the procedure/surgery. Please continue to hold this decision up in prayer and also our conversation with our team of doctors!
Again...thank you! Thank you for all your prayers, love, support, gifts, encouragement, dinners, time, energy and talent! Thank you for continuing to let God work in and through you, and please don't ever stop reflecting the Glory and Image of Christ in all you do! We love you...
All Eyes on Jesus!
Saturday, July 18, 2009
Consider it Pure Joy...
"Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything. If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him. But when he asks, he must believe and not doubt, because he who doubts is like a wave of the sea, blown and tossed by the wind." [James 1:2-6]
Now that is a tough question...are you considering the trial you are facing with pure joy? Don't you just love James "phrasing here"? Come on, are you kidding me! Pure joy...wow, talk about needing to "put your helmet on" for that hit! And I will testify that I know in the midst of this storm, God is not only testing our faith, but testing the faith of those around us...and to consider it with pure joy - just does not seem to make sense...unless you know the overwhelming Love, Peace and Strength of our Heavenly Father! But then again, neither does love your enemy, turn the other cheek, to lose your life is gain, and that is the point...it is not about understanding, it is about "accepting" the Truth, the trials and the testing that the Lord will bring in our lives with pure joy so that our faith in Him as Creator, Almighty God, Savior, Redeemer and Restorer continues to be developed, and that we may become mature and complete not lacking anything, as we continue to reflect His Glory and Image! This trial and the one you may be facing is just another opportunity for Him to reveal Himself! How nuts is that...but, that is our God, and His Love for us is beyond measure! It is not the wisdom of earth that would allow one to consider this trial we are facing Pure Joy...but this morning - in the midst of the strongest storm we have ever faced, I can honestly say that we have an "overwhelming peace" in our soul that is beyond all understanding!
God has given us Great Peace, Grace, Strength and Clarity that His Will is to move forward with the experimental procedure to save Jackson's life, and yesterday - we received news from Children's Hospital in Boston from their lead surgeon Dr. Wayne Tworetzky - who had the opportunity to study the echo/ultrasound reports yesterday afternoon - that Kelly and Jackson are a great candidate for this procedure. He also shared his encouragement that they found Jackson's condition so early and that he has a great confidence in our team of doctors/surgeons in Pittsburgh - with a great respect/regard for our Cardiologist, Dr. Fred Sherman and Pediatric Surgeon, Dr. Emery! So...with that information, we continue to be encouraged and will remain in prayer as make the final decision regarding "where" the procedure will take place within the next day or so!
As for the move...well, that is another story and a great need for your prayers...and this is where the second half of the verse above hits us in the gut! We received the estimate yesterday, and the total to pack and move us is around $4600 - and man did that take the wind out of the sails, and cause us to doubt! But, God is good, and we accept by faith that we must not waiver on the fact that God is moving us in 5 days! Truly, we don't have that kind of "financial margin" right now with everything we are facing - but, we know the promise of God and the incredible support we have around us in His hands and feet. So, we will pause here for a moment, pray and pursue His Peace and Clarity in the packing/move decision - and this just another opportunity for Him to reveal His Majesty, Power and Provision! Man of you are asking...and we still do not have clarity at this point regarding "where" to move in regards to what house/location God is leading us to. I know, we are 5 days out - but, consider it pure joy! And we will continue to walk in obedience to His Will, His Timing and His Provision and will wait upon the Lord for His clarity and direction!
So please pray - and pray hard, and do not doubt! Our God is an Awesome God, and we stand firm on His Promises, His Peace and His Grace as we accept this trial and know that He is developing our faith! Pray for the home, pray for the location, and pray for an overwhelming peace to fall upon us as we fervently pray for clarity and direction in the move!
All Eyes on Jesus...
Now that is a tough question...are you considering the trial you are facing with pure joy? Don't you just love James "phrasing here"? Come on, are you kidding me! Pure joy...wow, talk about needing to "put your helmet on" for that hit! And I will testify that I know in the midst of this storm, God is not only testing our faith, but testing the faith of those around us...and to consider it with pure joy - just does not seem to make sense...unless you know the overwhelming Love, Peace and Strength of our Heavenly Father! But then again, neither does love your enemy, turn the other cheek, to lose your life is gain, and that is the point...it is not about understanding, it is about "accepting" the Truth, the trials and the testing that the Lord will bring in our lives with pure joy so that our faith in Him as Creator, Almighty God, Savior, Redeemer and Restorer continues to be developed, and that we may become mature and complete not lacking anything, as we continue to reflect His Glory and Image! This trial and the one you may be facing is just another opportunity for Him to reveal Himself! How nuts is that...but, that is our God, and His Love for us is beyond measure! It is not the wisdom of earth that would allow one to consider this trial we are facing Pure Joy...but this morning - in the midst of the strongest storm we have ever faced, I can honestly say that we have an "overwhelming peace" in our soul that is beyond all understanding!
God has given us Great Peace, Grace, Strength and Clarity that His Will is to move forward with the experimental procedure to save Jackson's life, and yesterday - we received news from Children's Hospital in Boston from their lead surgeon Dr. Wayne Tworetzky - who had the opportunity to study the echo/ultrasound reports yesterday afternoon - that Kelly and Jackson are a great candidate for this procedure. He also shared his encouragement that they found Jackson's condition so early and that he has a great confidence in our team of doctors/surgeons in Pittsburgh - with a great respect/regard for our Cardiologist, Dr. Fred Sherman and Pediatric Surgeon, Dr. Emery! So...with that information, we continue to be encouraged and will remain in prayer as make the final decision regarding "where" the procedure will take place within the next day or so!
As for the move...well, that is another story and a great need for your prayers...and this is where the second half of the verse above hits us in the gut! We received the estimate yesterday, and the total to pack and move us is around $4600 - and man did that take the wind out of the sails, and cause us to doubt! But, God is good, and we accept by faith that we must not waiver on the fact that God is moving us in 5 days! Truly, we don't have that kind of "financial margin" right now with everything we are facing - but, we know the promise of God and the incredible support we have around us in His hands and feet. So, we will pause here for a moment, pray and pursue His Peace and Clarity in the packing/move decision - and this just another opportunity for Him to reveal His Majesty, Power and Provision! Man of you are asking...and we still do not have clarity at this point regarding "where" to move in regards to what house/location God is leading us to. I know, we are 5 days out - but, consider it pure joy! And we will continue to walk in obedience to His Will, His Timing and His Provision and will wait upon the Lord for His clarity and direction!
So please pray - and pray hard, and do not doubt! Our God is an Awesome God, and we stand firm on His Promises, His Peace and His Grace as we accept this trial and know that He is developing our faith! Pray for the home, pray for the location, and pray for an overwhelming peace to fall upon us as we fervently pray for clarity and direction in the move!
All Eyes on Jesus...
Friday, July 17, 2009
The Narrow Path...[continued]
[Sorry about the delay - talk about an inconvenience - but, it was definite reminder of how much we take for granted the technology of "electricity"...how did they function in "Walnut Grove"? And for whatever reason yesterday morning's post did not publish before the electricians cut the power - and I did not notice it until this morning. So, here's the rest of the story...Thanks Paul Harvey!]
"But small is the gate and narrow the road that leads to life, and only a few find it..." [Matthew 7:14]
We received some great advice the other day via a Facebook message, and it read: "Pray-Decide-and Don't look back!" So many times in life - we pray, yield to the prompting of the Spirit, decide/choose to trust and obey...and when the path narrows (or in this case seems to be no path at all - maybe just a leaf that is moved out of the way) we turn back, and rely on and lean into the wisdom of earth or our own understanding to a place that is "comfortable" or a physical space that may provide a false sense of "security", or desperately search for a "way out" ... but, Christ is the way to life, peace, security, sanctuary, comfort, refuge, strength, sight, future, goodness, hope, joy, worth, provision, patience, compassion, courage, faith, rescue and foundation to stand on when there seems to be no way! Its all because of Jesus that I am alive - literally! Christ is the one who saves...and He is the one that provides for our every need - through the hands, feet, hearts and resources of His Body - the church! And man...have we been a witness to that provision!
Provision is not just "financial resource" as so many might think...and one of the greatest moments this past week was when we had the opportunity to meet one of Jackson's heros - Kristen. It was Christ working in and through Kristen, that Jackson even has the opportunity to a "medically" full life. Kristen is the youngest member of the ultrasound team at Magee Women's Hospital, who just had a baby of her own, and the technician/nurse that detected "something wrong" with Jackson's heart last Tuesday. So many times...a condition similar to Jackson's is missed on ultrasound - but, Christ worked through the eyes, hands and talent of Kristen to provide (provision) a "medical" option to save His life to the full...and there is great peace that the Spirit is leading us to allow the Glory and Majesty of Christ to be on display through this "experimental procedure"!
So within the next two weeks - the team of doctor's will go in through Kelly's abdomen, into her uterus, into Jackson's chest, into his heart, and into his aorta (which, is the currently about the thickness of a dime) with a needle and attempt to "balloon" open the aortic valve, to regain natural/better flow out of the left ventricle in hopes of creating bi-ventricle circulation.
The greatest risk to Jackson is pre-term delivery during the procedure - in which there would be nothing the doctor's could "medically" do to save his life. Baby's must be at least 5 pounds in order to attempt cardiac surgery...and at 20 -23 weeks - Jackson is no where near strong enough or developed enough to perform a life saving surgery in a pre-term delivery situation. The greatest risk to Kelly is complications during/from the surgery - hemorrhaging, infection, etc.
If the procedure is "technically successful" - Jackson will have bi-ventricle circulation upon full-term delivery in December...where there may be a less serious surgery performed such as a valve replacement, angioplasty, etc - avoiding the very serious "Norwood surgeries" (series of surgeries at 2 days, 2-3 months, and 2-3 years to bypass the left heart - which would collapse before delivery - and use only the right side of the heart to provide blood/oxygen to the lungs and body.
With the decision made to move forward with the experimental procedure...now the prayer turns to "Pittsburgh vs/ Boston". Now...if it were the Pirates vs/ the Red Sox...there is no prayer necessary, as we continue to "trade for talent" here in Pittsburgh! Guess McClouth and Sanchez aren't talented - come on! Sorry...A.D.D kicked in there for a second!
We will no more today in this prayer point: as Children's Hospital in Boston will be reviewing the echo/utrasound reports this afternoon and letting us know their perspective on Jackson and Kelly as a canidate for this procedure.
As for the house/move situation...not so much peace there! Please continue to pray for strength, wisdom, PATIENCE, and clarity in this move! Even though we don't see the path right now...we will continue to obey and follow the leading of the Spirit in this move! We are getting estimates from moving companies in the area, working off the time line that they will finishing packing on Tuesday of next week, load/move on Wednesday (to where - we don't know yet), finish/clean on Thursday, close on the home Friday of next week! Talk about an adventure...can't wait to see the Lord's amusement park in Heaven! Forget a 5-point safety harness...think we will all need at least 10 points - hence the truth found in the FULL armour of God!
So that is the update...and sorry for not getting this out sooner! I know many of you have been "worrying"...but please remember what Christ taught us in Matthew 6: 33-34...“don’t worry about these things, saying, ‘What will we eat? What will we drink? What will we wear?’ [Where will we live?] These things dominate the thoughts of unbelievers, but your heavenly Father already knows all your needs. Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need.
“So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s trouble is enough for today.
Again...you have no idea how much your prayers, encouragement, love, support, phone calls, messages, texts, and shoulders to cry on mean to us! And please know that if we don't get back in touch with you right away...that maybe, just maybe the "lights went out" in Pittsburgh - or at least the electricity was turned off for the day! Honestly...the way that you are demonstrating the love, care, and compassion of our Risen Lord and Savior - is awesome and we are so blessed because of His Great Love working in and through you! Please continue to the prayers for Jackson...for Carter and Jordyn...for Kelly and I...for our home...the move...and for peace, strength, wisdom, discernment and clarity as we continue to lean into the Apostle Paul's words: "Forgetting the past and looking forward to what lies ahead, [we] press on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us!" [Philippians 3]
All Eyes on Jesus...
"But small is the gate and narrow the road that leads to life, and only a few find it..." [Matthew 7:14]
We received some great advice the other day via a Facebook message, and it read: "Pray-Decide-and Don't look back!" So many times in life - we pray, yield to the prompting of the Spirit, decide/choose to trust and obey...and when the path narrows (or in this case seems to be no path at all - maybe just a leaf that is moved out of the way) we turn back, and rely on and lean into the wisdom of earth or our own understanding to a place that is "comfortable" or a physical space that may provide a false sense of "security", or desperately search for a "way out" ... but, Christ is the way to life, peace, security, sanctuary, comfort, refuge, strength, sight, future, goodness, hope, joy, worth, provision, patience, compassion, courage, faith, rescue and foundation to stand on when there seems to be no way! Its all because of Jesus that I am alive - literally! Christ is the one who saves...and He is the one that provides for our every need - through the hands, feet, hearts and resources of His Body - the church! And man...have we been a witness to that provision!
Provision is not just "financial resource" as so many might think...and one of the greatest moments this past week was when we had the opportunity to meet one of Jackson's heros - Kristen. It was Christ working in and through Kristen, that Jackson even has the opportunity to a "medically" full life. Kristen is the youngest member of the ultrasound team at Magee Women's Hospital, who just had a baby of her own, and the technician/nurse that detected "something wrong" with Jackson's heart last Tuesday. So many times...a condition similar to Jackson's is missed on ultrasound - but, Christ worked through the eyes, hands and talent of Kristen to provide (provision) a "medical" option to save His life to the full...and there is great peace that the Spirit is leading us to allow the Glory and Majesty of Christ to be on display through this "experimental procedure"!
So within the next two weeks - the team of doctor's will go in through Kelly's abdomen, into her uterus, into Jackson's chest, into his heart, and into his aorta (which, is the currently about the thickness of a dime) with a needle and attempt to "balloon" open the aortic valve, to regain natural/better flow out of the left ventricle in hopes of creating bi-ventricle circulation.
The greatest risk to Jackson is pre-term delivery during the procedure - in which there would be nothing the doctor's could "medically" do to save his life. Baby's must be at least 5 pounds in order to attempt cardiac surgery...and at 20 -23 weeks - Jackson is no where near strong enough or developed enough to perform a life saving surgery in a pre-term delivery situation. The greatest risk to Kelly is complications during/from the surgery - hemorrhaging, infection, etc.
If the procedure is "technically successful" - Jackson will have bi-ventricle circulation upon full-term delivery in December...where there may be a less serious surgery performed such as a valve replacement, angioplasty, etc - avoiding the very serious "Norwood surgeries" (series of surgeries at 2 days, 2-3 months, and 2-3 years to bypass the left heart - which would collapse before delivery - and use only the right side of the heart to provide blood/oxygen to the lungs and body.
With the decision made to move forward with the experimental procedure...now the prayer turns to "Pittsburgh vs/ Boston". Now...if it were the Pirates vs/ the Red Sox...there is no prayer necessary, as we continue to "trade for talent" here in Pittsburgh! Guess McClouth and Sanchez aren't talented - come on! Sorry...A.D.D kicked in there for a second!
We will no more today in this prayer point: as Children's Hospital in Boston will be reviewing the echo/utrasound reports this afternoon and letting us know their perspective on Jackson and Kelly as a canidate for this procedure.
As for the house/move situation...not so much peace there! Please continue to pray for strength, wisdom, PATIENCE, and clarity in this move! Even though we don't see the path right now...we will continue to obey and follow the leading of the Spirit in this move! We are getting estimates from moving companies in the area, working off the time line that they will finishing packing on Tuesday of next week, load/move on Wednesday (to where - we don't know yet), finish/clean on Thursday, close on the home Friday of next week! Talk about an adventure...can't wait to see the Lord's amusement park in Heaven! Forget a 5-point safety harness...think we will all need at least 10 points - hence the truth found in the FULL armour of God!
So that is the update...and sorry for not getting this out sooner! I know many of you have been "worrying"...but please remember what Christ taught us in Matthew 6: 33-34...“don’t worry about these things, saying, ‘What will we eat? What will we drink? What will we wear?’ [Where will we live?] These things dominate the thoughts of unbelievers, but your heavenly Father already knows all your needs. Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need.
“So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s trouble is enough for today.
Again...you have no idea how much your prayers, encouragement, love, support, phone calls, messages, texts, and shoulders to cry on mean to us! And please know that if we don't get back in touch with you right away...that maybe, just maybe the "lights went out" in Pittsburgh - or at least the electricity was turned off for the day! Honestly...the way that you are demonstrating the love, care, and compassion of our Risen Lord and Savior - is awesome and we are so blessed because of His Great Love working in and through you! Please continue to the prayers for Jackson...for Carter and Jordyn...for Kelly and I...for our home...the move...and for peace, strength, wisdom, discernment and clarity as we continue to lean into the Apostle Paul's words: "Forgetting the past and looking forward to what lies ahead, [we] press on to reach the end of the race and receive the heavenly prize for which God, through Christ Jesus, is calling us!" [Philippians 3]
All Eyes on Jesus...
Thursday, July 16, 2009
The Narrow Path...
"Enter through the narrow gate. For wide is the gate and broad is the road that leads to destruction, and many enter through it. But small is the gate and narrow the road that leads to life, and only a few find it." ... [Jesus' words found in Matthew 7:13-14]
As we sat in the waiting room yesterday morning, we opened 'The Journey"...a book written by Billy Graham about walking by faith in uncertain times...and the crazy thing about this is that the book was sent to me from the BGEA the day we found out about Jackson's condition. And as we sat there and read about "narrow is the gate that leads to life" - the prayer conversation that followed was one that I will never forget.
It was full day of conversation - we dropped Carter and Jordyn off at Uncle Greg and Aunt Mel's at 9:00am and never got back home until almost 5:00pm. It was an intense day of prayer, discernment, knowledge and information overload - and we still debriefing all that was shared! The morning started with another ultrasound to make sure that Jackson's heart was stable, looking to make sure that the left ventricle was still enlarged, and that his physical development shows no sign of heart failure. We will be having weekly echos and ultrasounds to monitor Jackson's condition - and ensure that the left side of his heart is not beginning to collapse. If the left side collapses (becoming Hypoplastic Left Heart Syndrome) the experimental procedure is then not an option to save Jackson's life.
And so after many conversations and hours of prayer - Kelly and I have decided to move forward with the experimental procedure. And now are in prayer whether or not to have the procedure completed in Pittsburgh or Boston...
[Sorry...going to have to pick it up here later - the electricians are here to finish the electrical work for the home inspection repairs and just informed me they will be cutting the power for the rest of the day! ]
All Eyes on Jesus...
As we sat in the waiting room yesterday morning, we opened 'The Journey"...a book written by Billy Graham about walking by faith in uncertain times...and the crazy thing about this is that the book was sent to me from the BGEA the day we found out about Jackson's condition. And as we sat there and read about "narrow is the gate that leads to life" - the prayer conversation that followed was one that I will never forget.
It was full day of conversation - we dropped Carter and Jordyn off at Uncle Greg and Aunt Mel's at 9:00am and never got back home until almost 5:00pm. It was an intense day of prayer, discernment, knowledge and information overload - and we still debriefing all that was shared! The morning started with another ultrasound to make sure that Jackson's heart was stable, looking to make sure that the left ventricle was still enlarged, and that his physical development shows no sign of heart failure. We will be having weekly echos and ultrasounds to monitor Jackson's condition - and ensure that the left side of his heart is not beginning to collapse. If the left side collapses (becoming Hypoplastic Left Heart Syndrome) the experimental procedure is then not an option to save Jackson's life.
And so after many conversations and hours of prayer - Kelly and I have decided to move forward with the experimental procedure. And now are in prayer whether or not to have the procedure completed in Pittsburgh or Boston...
[Sorry...going to have to pick it up here later - the electricians are here to finish the electrical work for the home inspection repairs and just informed me they will be cutting the power for the rest of the day! ]
All Eyes on Jesus...
Wednesday, July 15, 2009
Day of Prayer and Decision...
Good morning! Just wanted to write quickly with a huge prayer request and update!
Yesterday was an awesome day! Not just beautiful in creation, as the sun was shining bright with a cool breeze in the air at "Idlewild Park and Soak Zone" - but, it was amazing to just be able to spend the day together as a family in celebration of Carter's 5th birthday! Can you believe he is five already...and what awesome faith he continues to demonstrate in Jesus! When we shared the news with Carter about Jackson being sick a couple of days ago, Carter's first response was "why?" - of course - and after we explained that Jackson had a problem with his heart and that God is taking care of him, Carter responds, "well I want to get in your belly mom and take care of him too!" Talk about an awesome big brother!
Yesterday was a day that we desperately needed - just a day to remind us what life is all about! Funnel Cakes and Ferris Wheels - with a fit in between from Jordyn! Just kidding - that is all true, but the day was a reminder that life on this earth is to reflect the Glory and Image of our Lord and Savior, as individuals, family, community and church! It is that simple...and there were so many things that happened yesterday that brought us to tears through shouts of praise as God continues to reveal himself in the midst of this "earthquake"!
Today is a day of decision - and I ask that you please join us in prayer for wisdom, strength, unity, and clarity as we discuss plans with Dr. Speer, Dr. Sherman, Dr. Emery and Michelle Clemens (Coordinator of the FDTC at UPMC) this morning at 10:00am.
We are leaning towards having the experimental procedure done in the next week or so...and I will be able to share more details later this afternoon/evening with you here on the blog!
Thank you again for allowing God to work in and through you...as your encouragement, prayer, support and reflection of our Lord and Savior have been "seriously ridiculous!" We love you!
All Eyes on Jesus...
"God is our refuge and strength, always ready to help in times of trouble. So we will not fear when earthquakes come and the mountains crumble into the sea. Let the oceans roar and foam. Let the mountains tremble as the waters surge!
A river brings joy to the city of our God, the sacred home of the Most High. God dwells in that city; it cannot be destroyed. From the very break of day, God will protect it. The nations are in chaos, and their kingdoms crumble! God’s voice thunders, and the earth melts! The Lord of Heaven’s Armies is here among us; the God of Israel is our fortress.
Come, see the glorious works of the Lord: See how he brings destruction upon the world. He causes wars to end throughout the earth. He breaks the bow and snaps the spear; he burns the shields with fire.
“Be still, and know that I am God! I will be honored by every nation. I will be honored throughout the world.”
The Lord of Heaven’s Armies is here among us; the God of Israel is our fortress. " [Psalm 46]
Yesterday was an awesome day! Not just beautiful in creation, as the sun was shining bright with a cool breeze in the air at "Idlewild Park and Soak Zone" - but, it was amazing to just be able to spend the day together as a family in celebration of Carter's 5th birthday! Can you believe he is five already...and what awesome faith he continues to demonstrate in Jesus! When we shared the news with Carter about Jackson being sick a couple of days ago, Carter's first response was "why?" - of course - and after we explained that Jackson had a problem with his heart and that God is taking care of him, Carter responds, "well I want to get in your belly mom and take care of him too!" Talk about an awesome big brother!
Yesterday was a day that we desperately needed - just a day to remind us what life is all about! Funnel Cakes and Ferris Wheels - with a fit in between from Jordyn! Just kidding - that is all true, but the day was a reminder that life on this earth is to reflect the Glory and Image of our Lord and Savior, as individuals, family, community and church! It is that simple...and there were so many things that happened yesterday that brought us to tears through shouts of praise as God continues to reveal himself in the midst of this "earthquake"!
Today is a day of decision - and I ask that you please join us in prayer for wisdom, strength, unity, and clarity as we discuss plans with Dr. Speer, Dr. Sherman, Dr. Emery and Michelle Clemens (Coordinator of the FDTC at UPMC) this morning at 10:00am.
We are leaning towards having the experimental procedure done in the next week or so...and I will be able to share more details later this afternoon/evening with you here on the blog!
Thank you again for allowing God to work in and through you...as your encouragement, prayer, support and reflection of our Lord and Savior have been "seriously ridiculous!" We love you!
All Eyes on Jesus...
"God is our refuge and strength, always ready to help in times of trouble. So we will not fear when earthquakes come and the mountains crumble into the sea. Let the oceans roar and foam. Let the mountains tremble as the waters surge!
A river brings joy to the city of our God, the sacred home of the Most High. God dwells in that city; it cannot be destroyed. From the very break of day, God will protect it. The nations are in chaos, and their kingdoms crumble! God’s voice thunders, and the earth melts! The Lord of Heaven’s Armies is here among us; the God of Israel is our fortress.
Come, see the glorious works of the Lord: See how he brings destruction upon the world. He causes wars to end throughout the earth. He breaks the bow and snaps the spear; he burns the shields with fire.
“Be still, and know that I am God! I will be honored by every nation. I will be honored throughout the world.”
The Lord of Heaven’s Armies is here among us; the God of Israel is our fortress. " [Psalm 46]
Monday, July 13, 2009
Fetal Disorder Treatment Center Update...
Just a quick update regarding our conversations this morning with Fetal Disorder Treatment Center (FDTC) of UPMC and Dr. Speer - who get this...attends the same church, NorthWay Christian Community as we do! Talk about a blessing and and an opportunity to see that God is in every detail!
We had a great conversation and we have an appointment Wednesday morning at 10am to sit down with FDTC and our team of doctors to discuss in depth the experimental "Fetal Aorta Balloon Valvoplasty" procedure. Just for your prayers...it looks like we will have weekly hospital/doctor visits for both Kelly and Jackson through the end of the pregnancy, beyond the experimental procedure or Norwood surgeries to save Jackson's life at his birth. Our life has drastically changed in a matter of three days - and we are doing alright with this, but are just now really beginning to realize the severity of "life change" we are experiencing! Please continue to pray for strength, energy, peace and wisdom today - as we still need to talk with our realtor and PA Land Titles regarding the closing on July 24.
I also had an awesome conversation this morning with a great brother in Christ who shared this verse with me and hope it encourages you as much as it has us:
[David] sang:
“The Lord is my rock, my fortress, and my savior; my God is my rock, in whom I find protection. He is my shield, the power that saves me, and my place of safety. He is my refuge, my savior, the one who saves me from violence. I called on the Lord, who is worthy of praise, and he saved me from my enemies." [2 Samuel 22:2-4]
Continue to sing praise to Him...and Keep your Eyes on Jesus! Love you all so much...
We had a great conversation and we have an appointment Wednesday morning at 10am to sit down with FDTC and our team of doctors to discuss in depth the experimental "Fetal Aorta Balloon Valvoplasty" procedure. Just for your prayers...it looks like we will have weekly hospital/doctor visits for both Kelly and Jackson through the end of the pregnancy, beyond the experimental procedure or Norwood surgeries to save Jackson's life at his birth. Our life has drastically changed in a matter of three days - and we are doing alright with this, but are just now really beginning to realize the severity of "life change" we are experiencing! Please continue to pray for strength, energy, peace and wisdom today - as we still need to talk with our realtor and PA Land Titles regarding the closing on July 24.
I also had an awesome conversation this morning with a great brother in Christ who shared this verse with me and hope it encourages you as much as it has us:
[David] sang:
“The Lord is my rock, my fortress, and my savior; my God is my rock, in whom I find protection. He is my shield, the power that saves me, and my place of safety. He is my refuge, my savior, the one who saves me from violence. I called on the Lord, who is worthy of praise, and he saved me from my enemies." [2 Samuel 22:2-4]
Continue to sing praise to Him...and Keep your Eyes on Jesus! Love you all so much...
Sunday, July 12, 2009
Day of Wisdom...
I just want you to know right off the bat that our prayers are being answered! We have been praying for wisdom and peace over the last three days - and here is the promise heard this morning at church during Pastor Jay's sermon: "But the wisdom from above is first of all pure. It is also peace loving, gentle at all times, and willing to yield to others. It is full of mercy and good deeds. It shows no favoritism and is always sincere. And those who are peacemakers will plant seeds of peace and reap a harvest of righteousness." [James 3:17-18]
Now how awesome is that Word from the Lord! Over the last two days, there have been so many prayers lifted and so many decisions made - but, as Kel and I have stated from the beginning of this journey months ago, the only decision we need to make is to pursue Christ in all that we do! Seek Him, Go After Him, Lean into Him - for in Him lies hidden the treasure of wisdom and peace! And I have to tell you...to see His Body rallying around us these last couple of days has been amazing and so humbling - but, two phone calls early this morning from two great brothers in Christ started off a day that was full of amazing blessings! I once heard Tony Evans describe blessing as "enjoying and extending the favor and provision of God" - and man that is exactly what these guys did this morning!
First, let me update you quickly on the move. After seeking wise counsel, and talking with a real estate attorney - ...and yielding and surrendering to the Spirit, which is leading us to continue in the move! We have decided that in light of all that is happening a legal battle or more financial strain is a battle that the Lord is not leading us into! So...we will be looking to the support and services of a moving company to help relieve the stress of packing and moving. We are still without a home at this point - but, after talking with several friends, our pastor and elders at NorthWay Christian Community - several homes have been offered to us as a temporary place to "hunker down" in the midst of all we are going to face in the next several months! How awesome is our God and the way He reveals himself through the Body!
We still are feeling led to look into securing a home of our own - but, the burden/pressure of a timeline in finding a place has been lifted tremendously with the options that have been presented - and thank you so much to all of you who have offered and supported us with the resources He has blessed you with! You all have been "seriously ridiculous" - that is my new phrase for saying thank you - and we are eternally grateful!
Tomorrow, Monday, is going to be a big day - and we need your prayers for continued wisdom, strength and discernment! We have had a great day of rest today...but, tomorrow is a day of decision. We will be talking with the Fetal Disorder Treatment Center of UPMC and making many decisions regarding the experimental procedure. Please pray specifically for our ears/hearts to be open to the wisdom from heaven, and for His peace to overwhelm us as we walk through many conversations with the doctors/hospitals. Also, we will be coordinating/preparing all the "closing details and papers"...just in case we are not able to attend the closing July 24th. We will also be talking with several banks regarding financing/mortgage options - and so prayers through all of those conversations will me much appreciated!
I want to share a scripture and great promise that the Lord laid on Kelly's heart today from 2 Kings 20:5 - and this will be the Word/Promise we will be standing firm in over the next serveral weeks/months/years: "I have heard your prayers, I have seen your tears. Surely, I will heal you!" Praise God for the Victory we have in our Lord and Savior! He is Jesus Messiah, Redeemer, Restorer, Rescue, King of Kings and Lord of Lords and we accept it by faith that He has gone before us and He is our Strength and Refuge!
All Eyes on Jesus...
Now how awesome is that Word from the Lord! Over the last two days, there have been so many prayers lifted and so many decisions made - but, as Kel and I have stated from the beginning of this journey months ago, the only decision we need to make is to pursue Christ in all that we do! Seek Him, Go After Him, Lean into Him - for in Him lies hidden the treasure of wisdom and peace! And I have to tell you...to see His Body rallying around us these last couple of days has been amazing and so humbling - but, two phone calls early this morning from two great brothers in Christ started off a day that was full of amazing blessings! I once heard Tony Evans describe blessing as "enjoying and extending the favor and provision of God" - and man that is exactly what these guys did this morning!
First, let me update you quickly on the move. After seeking wise counsel, and talking with a real estate attorney - ...and yielding and surrendering to the Spirit, which is leading us to continue in the move! We have decided that in light of all that is happening a legal battle or more financial strain is a battle that the Lord is not leading us into! So...we will be looking to the support and services of a moving company to help relieve the stress of packing and moving. We are still without a home at this point - but, after talking with several friends, our pastor and elders at NorthWay Christian Community - several homes have been offered to us as a temporary place to "hunker down" in the midst of all we are going to face in the next several months! How awesome is our God and the way He reveals himself through the Body!
We still are feeling led to look into securing a home of our own - but, the burden/pressure of a timeline in finding a place has been lifted tremendously with the options that have been presented - and thank you so much to all of you who have offered and supported us with the resources He has blessed you with! You all have been "seriously ridiculous" - that is my new phrase for saying thank you - and we are eternally grateful!
Tomorrow, Monday, is going to be a big day - and we need your prayers for continued wisdom, strength and discernment! We have had a great day of rest today...but, tomorrow is a day of decision. We will be talking with the Fetal Disorder Treatment Center of UPMC and making many decisions regarding the experimental procedure. Please pray specifically for our ears/hearts to be open to the wisdom from heaven, and for His peace to overwhelm us as we walk through many conversations with the doctors/hospitals. Also, we will be coordinating/preparing all the "closing details and papers"...just in case we are not able to attend the closing July 24th. We will also be talking with several banks regarding financing/mortgage options - and so prayers through all of those conversations will me much appreciated!
I want to share a scripture and great promise that the Lord laid on Kelly's heart today from 2 Kings 20:5 - and this will be the Word/Promise we will be standing firm in over the next serveral weeks/months/years: "I have heard your prayers, I have seen your tears. Surely, I will heal you!" Praise God for the Victory we have in our Lord and Savior! He is Jesus Messiah, Redeemer, Restorer, Rescue, King of Kings and Lord of Lords and we accept it by faith that He has gone before us and He is our Strength and Refuge!
All Eyes on Jesus...
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